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Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors

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@article{dba70f46602f495fb23a818f40725ee0,
title = "Patient ambassador support: Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors",
abstract = "OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme.METHODS: Explorative semi-structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data.RESULTS: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life.CONCLUSIONS: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer-to-peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer-to-peer support interventions along the trajectory of acute leukaemia.",
keywords = "acute leukaemia, mentorship, patient ambassador, peer support, qualitative interviews, social support",
author = "N{\o}rskov, {Kristina Holmegaard} and Dorthe Overgaard and Kirsten Lomborg and Lars Kjeldsen and Mary Jarden",
note = "{\textcopyright} 2020 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.",
year = "2020",
month = nov,
doi = "10.1111/ecc.13289",
language = "English",
volume = "29",
pages = "e13289",
journal = "European journal of cancer Care",
issn = "0961-5423",
publisher = "Wiley-Blackwell Publishing Ltd",
number = "6",

}

RIS

TY - JOUR

T1 - Patient ambassador support

T2 - Experiences of the mentorship between newly diagnosed patients with acute leukaemia and their patient ambassadors

AU - Nørskov, Kristina Holmegaard

AU - Overgaard, Dorthe

AU - Lomborg, Kirsten

AU - Kjeldsen, Lars

AU - Jarden, Mary

N1 - © 2020 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.

PY - 2020/11

Y1 - 2020/11

N2 - OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme.METHODS: Explorative semi-structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data.RESULTS: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life.CONCLUSIONS: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer-to-peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer-to-peer support interventions along the trajectory of acute leukaemia.

AB - OBJECTIVE: The study explores how newly diagnosed patients with acute leukaemia and their patient ambassadors experience the mentorship during the patient ambassador support programme.METHODS: Explorative semi-structured individual interviews (n = 28) were carried out in patients with acute leukaemia (n = 15) and their patient ambassadors (n = 13). Interpretive description was the methodological framework used for the thematic analysis of the qualitative interview data.RESULTS: Identified themes were as follows: (a) exchanging life experiences (subthemes: individualised support and a meaningful return); (b) existential cohesion; (c) interreflection; and (d) terms and conditions (subtheme: break in journey). Patients experienced a feeling of being understood, the cohesion leading to hope and a feeling of being able to cope with their situation. Patient ambassadors experienced a sense of meaningfulness and gratitude for life.CONCLUSIONS: Patients and patient ambassadors experienced benefits from the individualised support. Their shared experiences created a connection and mutual mirroring, which led to a sense of hope and gratitude for life. Initiatives that introduce peer-to-peer support in newly diagnosed patients with acute leukaemia as part of treatment and in daily clinical practice are crucial. Future studies should further examine the feasibility of peer-to-peer support interventions along the trajectory of acute leukaemia.

KW - acute leukaemia

KW - mentorship

KW - patient ambassador

KW - peer support

KW - qualitative interviews

KW - social support

UR - http://www.scopus.com/inward/record.url?scp=85087213275&partnerID=8YFLogxK

U2 - 10.1111/ecc.13289

DO - 10.1111/ecc.13289

M3 - Journal article

C2 - 32596951

VL - 29

SP - e13289

JO - European journal of cancer Care

JF - European journal of cancer Care

SN - 0961-5423

IS - 6

M1 - e13289

ER -

ID: 60720332