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Rigshospitalet - a part of Copenhagen University Hospital
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Past, present and future, the experience of time during examination for malignant brain tumor: a qualitative observational study

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  1. Living with the cerebellar mutism syndrome: long-term challenges of the diagnosis

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  2. Surgical occlusion of middle meningeal artery in treatment of chronic subdural haematoma: anatomical and technical considerations

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  3. Long-term telemetric intracerebral pressure monitoring as a tool in intracranial hypotension

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  4. Changes in intracranial pressure and pulse wave amplitude during postural shifts

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  1. Somatostatin receptor-targeted radiopeptide therapy in treatment-refractory meningioma: Individual Patient Data Meta-analysis

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  2. PET imaging of meningioma with 18F-FLT: a predictor of tumour progression

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  3. Pharmacokinetic analysis of [68Ga]Ga-DOTA-TOC PET in meningiomas for assessment of in vivo somatostatin receptor subtype 2

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  4. In vivo imaging of cell proliferation in meningioma using 3'-deoxy-3'-[18F]fluorothymidine PET/MRI

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  5. Development of a Measure of Nociception for Patients with Severe Brain Injury

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BACKGROUND: Primary malignant brain tumor is a severe disease with a poor prognosis causing reduced life expectancy and possible alteration in the perception of time. The aim of this study was to gain deeper insight into the perception of time from the perspective of patients with brain cancer as they pass through the Danish Integrated Brain Cancer Pathway at a university hospital in Denmark.

METHODS: Data were generated by shadowing six patients and relatives during their visit to and hospitalisation in a neurosurgical department.

RESULTS: Through one constructed case, three perspectives of time were identified. The patient's perception of time during his illness, the healthcare system's perception of time and, finally, an ethical time perspective. The analysis showed a discrepancy between patients' and healthcare professionals' perception of time. Furthermore, the results revealed an ethical time dimension.

CONCLUSIONS: The findings contribute to a better understanding of the perception of time among seriously ill patients and may further healthcare professionals' awareness of how to support patients in achieving a more meaningful use of their remaining lifetime.

Original languageEnglish
JournalActa Neurochirurgica
Volume163
Issue number4
Pages (from-to)959-967
Number of pages9
ISSN0001-6268
DOIs
Publication statusPublished - Apr 2021

    Research areas

  • Malignant brain tumor, Neurosurgery, Observational study, Qualitative research, Time perception

ID: 63844458