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Rigshospitalet - a part of Copenhagen University Hospital
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Family needs at one and two years after severe traumatic brain injury: a prospective study of changes and predictors

Research output: Contribution to journalJournal articleResearchpeer-review

  1. Predictors of disability in adolescents and young adults with acquired brain injury after the acute phase

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. The Family Needs Questionnaire-Revised: a Rasch analysis of measurement properties in the chronic phase after traumatic brain injury

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Communication with patients in post-traumatic confusional state: Perception of rehabilitation staff

    Research output: Contribution to journalReviewResearchpeer-review

  4. Post-traumatic stress disorder attributed to traumatic brain injury in children - a systematic review

    Research output: Contribution to journalReviewResearchpeer-review

  • Audny Anke
  • Cecilie Røe
  • Solrun Sigurdardottir
  • Anne Norup
  • Helene L Soberg
  • Juan Carlos Arango-Lasprilla
  • Unn Sollid Manskow
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Objective: To assess changes in family needs between the first and second years after severe traumatic brain injury (sTBI) and to identify factors predicting unmet family needs.Design: Prospective Norwegian multicenter cohort study.Participants: The family members of 110 patients with sTBI were followed up at one year, and family members of 70 patients also at two years after trauma.Main measure: The Family Needs Questionnaire-Revised (FNQ-R).Results: Mean ratings of met family needs changed with a small decline between one year and two years post-injury on the FNQ-R subscales of Health Information and of Community Support Network. Proportions of needs met at one and two years ranged between 28% and 55%. Family needs most often met were from the Health Information subscale, and needs most often unmet were from the Emotional Support subscale. Caring for older patients, patients with more functional disabilities, female patients and being a spouse of a patient were associated with statistically significantly greater unmet family needs.Conclusion: Family members of survivors of traumatic brain injuries experience high levels of unmet needs, and rating of met needs tends to decline from one to two years post-injury. The identified predictors of unmet needs can contribute to guiding services following sTBI.

Original languageEnglish
JournalBrain Injury
Volume34
Issue number1
Pages (from-to)89-97
Number of pages9
ISSN0269-9052
DOIs
Publication statusPublished - 2020

    Research areas

  • chronic, family, relatives, support systems, Traumatic brain injury

ID: 60132385