Forskning
Udskriv Udskriv
Switch language
Rigshospitalet - en del af Københavns Universitetshospital
Udgivet

Research agenda for life-threatening cancer

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Classmates motivate childhood cancer patients to participate in physical activity during treatment: A qualitative study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Pediatric cancer families' participation in whole-genome sequencing research in Denmark: Parent perspectives

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Needs and preferences among patients with high-grade glioma and their caregivers: a longitudinal mixed methods study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Development of health-related quality of life and symptoms in patients with advanced cancer in Greenland

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  5. Regaining familiarity with own body after treatment for operable lung cancer: a qualitative longitudinal exploration

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

OBJECTIVES: The aim of this study was to identify future research agendas that reflect the concerns and unexplored areas of interest for patients with life-threatening cancer, their relatives and the clinical specialists during the cancer trajectory.

METHODS: Six focus group discussions were conducted addressing two different cancer trajectories: primary malignant brain tumour and acute leukaemia. For each of the two cancer trajectories, separate FGIs were carried out with patients, relatives and clinical specialists to identify important concerns, challenges and uncertainties. The FGIs were video/audio-recorded, transcribed and thematically analysed within and across FGI groups to construct research topics. Finally, the literature was reviewed for existing evidence concerning the identified research topic(s) to strengthen the suggested research agendas.

RESULTS: New research agendas related to high-grade glioma brain tumour and acute leukaemia with corresponding research questions were formulated within the topics of supportive care/palliation, education/information, rehabilitation, complementary and alternative therapy and organization of health care.

CONCLUSION: User involvement in identifying research agendas has the potential to improve quality of care for patients and caregivers across the cancer trajectory, while minimizing the gap in research between the healthcare user and healthcare provider.

OriginalsprogEngelsk
TidsskriftEuropean Journal of Cancer Care
Vol/bind28
Udgave nummer1
Sider (fra-til)e12935
ISSN0961-5423
DOI
StatusUdgivet - 2019

ID: 55506311