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Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting

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Lund, Line ; Ross, Lone ; Petersen, Morten Aagaard ; Rosted, Elizabeth ; Bollig, Georg ; Juhl, Gitte Irene ; Farholt, Hanne ; Winther, Helen ; Laursen, Louise ; Blaaberg, Elin Gundelund ; Weensgaard, Signe ; Guldin, Mai-Britt ; Ewing, Gail ; Grande, Gunn ; Groenvold, Mogens. / Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting. I: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 2022 ; Bind 30. s. 377-387.

Bibtex

@article{c667eb6cac5d4c909b1b5e881299b029,
title = "Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting",
abstract = "PURPOSE: The Carer Support Needs Assessment Tool Intervention (CSNAT-I) has shown positive effects in the Danish specialised palliative care (SPC) setting. Here, we explore the process, content, and experiences of delivering the CSNAT-I.METHODS: Data were collected during a stepped wedge cluster randomised controlled trial investigating the impact of the CSNAT-I in the Danish SPC setting in 2018-2019. Data were obtained from the CSNAT (tool) completed by caregivers, from health care professionals' (HCPs') written documentation of the CSNAT-I, and from semi-structured interviews with HCPs.RESULTS: The study population consisted of the 130 caregivers receiving a first CSNAT-I within 13 days of study enrolment, the 93 caregivers receiving a second CSNAT-I 15-27 days after enrolment, and the 44 HCPs delivering the intervention. Top three domains of unmet caregiver support needs reported in the CSNAT-I were: {"}knowing what to expect in the future,{"} {"}dealing with feelings and worries,{"} and {"}understanding the illness.{"} These domains together with {"}knowing who to contact if concerned{"} and {"}talking to the patient about the illness{"} were also the domains most frequently prioritised for discussion with HCPs. According to HCPs, most often support delivered directly by HCPs themselves during the actual contact (e.g., listening, advice, information) was sufficient. Overall, HCPs experienced the CSNAT-I as constructive and meaningful, and difficulties in delivering the intervention were rarely an issue.CONCLUSION: The support needs reported by caregivers confirm the relevance of the CSNAT-I. HCPs' overall experiences of the clinical feasibility and relevance of the CSNAT-I were very positive. ClinicalTrials.gov ID: NCT03466580. Date of registration: March 1, 2018.",
keywords = "Caregivers, Intervention, Palliative care, Process evaluation, Support needs",
author = "Line Lund and Lone Ross and Petersen, {Morten Aagaard} and Elizabeth Rosted and Georg Bollig and Juhl, {Gitte Irene} and Hanne Farholt and Helen Winther and Louise Laursen and Blaaberg, {Elin Gundelund} and Signe Weensgaard and Mai-Britt Guldin and Gail Ewing and Gunn Grande and Mogens Groenvold",
note = "{\textcopyright} 2021. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.",
year = "2022",
month = jan,
day = "1",
doi = "10.1007/s00520-021-06432-1",
language = "English",
volume = "30",
pages = "377--387",
journal = "Supportive Care in Cancer",
issn = "0941-4355",
publisher = "Springer",

}

RIS

TY - JOUR

T1 - Process, content, and experiences of delivering the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the Danish specialised palliative care setting

AU - Lund, Line

AU - Ross, Lone

AU - Petersen, Morten Aagaard

AU - Rosted, Elizabeth

AU - Bollig, Georg

AU - Juhl, Gitte Irene

AU - Farholt, Hanne

AU - Winther, Helen

AU - Laursen, Louise

AU - Blaaberg, Elin Gundelund

AU - Weensgaard, Signe

AU - Guldin, Mai-Britt

AU - Ewing, Gail

AU - Grande, Gunn

AU - Groenvold, Mogens

N1 - © 2021. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.

PY - 2022/1/1

Y1 - 2022/1/1

N2 - PURPOSE: The Carer Support Needs Assessment Tool Intervention (CSNAT-I) has shown positive effects in the Danish specialised palliative care (SPC) setting. Here, we explore the process, content, and experiences of delivering the CSNAT-I.METHODS: Data were collected during a stepped wedge cluster randomised controlled trial investigating the impact of the CSNAT-I in the Danish SPC setting in 2018-2019. Data were obtained from the CSNAT (tool) completed by caregivers, from health care professionals' (HCPs') written documentation of the CSNAT-I, and from semi-structured interviews with HCPs.RESULTS: The study population consisted of the 130 caregivers receiving a first CSNAT-I within 13 days of study enrolment, the 93 caregivers receiving a second CSNAT-I 15-27 days after enrolment, and the 44 HCPs delivering the intervention. Top three domains of unmet caregiver support needs reported in the CSNAT-I were: "knowing what to expect in the future," "dealing with feelings and worries," and "understanding the illness." These domains together with "knowing who to contact if concerned" and "talking to the patient about the illness" were also the domains most frequently prioritised for discussion with HCPs. According to HCPs, most often support delivered directly by HCPs themselves during the actual contact (e.g., listening, advice, information) was sufficient. Overall, HCPs experienced the CSNAT-I as constructive and meaningful, and difficulties in delivering the intervention were rarely an issue.CONCLUSION: The support needs reported by caregivers confirm the relevance of the CSNAT-I. HCPs' overall experiences of the clinical feasibility and relevance of the CSNAT-I were very positive. ClinicalTrials.gov ID: NCT03466580. Date of registration: March 1, 2018.

AB - PURPOSE: The Carer Support Needs Assessment Tool Intervention (CSNAT-I) has shown positive effects in the Danish specialised palliative care (SPC) setting. Here, we explore the process, content, and experiences of delivering the CSNAT-I.METHODS: Data were collected during a stepped wedge cluster randomised controlled trial investigating the impact of the CSNAT-I in the Danish SPC setting in 2018-2019. Data were obtained from the CSNAT (tool) completed by caregivers, from health care professionals' (HCPs') written documentation of the CSNAT-I, and from semi-structured interviews with HCPs.RESULTS: The study population consisted of the 130 caregivers receiving a first CSNAT-I within 13 days of study enrolment, the 93 caregivers receiving a second CSNAT-I 15-27 days after enrolment, and the 44 HCPs delivering the intervention. Top three domains of unmet caregiver support needs reported in the CSNAT-I were: "knowing what to expect in the future," "dealing with feelings and worries," and "understanding the illness." These domains together with "knowing who to contact if concerned" and "talking to the patient about the illness" were also the domains most frequently prioritised for discussion with HCPs. According to HCPs, most often support delivered directly by HCPs themselves during the actual contact (e.g., listening, advice, information) was sufficient. Overall, HCPs experienced the CSNAT-I as constructive and meaningful, and difficulties in delivering the intervention were rarely an issue.CONCLUSION: The support needs reported by caregivers confirm the relevance of the CSNAT-I. HCPs' overall experiences of the clinical feasibility and relevance of the CSNAT-I were very positive. ClinicalTrials.gov ID: NCT03466580. Date of registration: March 1, 2018.

KW - Caregivers

KW - Intervention

KW - Palliative care

KW - Process evaluation

KW - Support needs

UR - http://www.scopus.com/inward/record.url?scp=85111080178&partnerID=8YFLogxK

U2 - 10.1007/s00520-021-06432-1

DO - 10.1007/s00520-021-06432-1

M3 - Journal article

C2 - 34296334

VL - 30

SP - 377

EP - 387

JO - Supportive Care in Cancer

JF - Supportive Care in Cancer

SN - 0941-4355

ER -

ID: 67034349