Forskning
Udskriv Udskriv
Switch language
Rigshospitalet - en del af Københavns Universitetshospital
Udgivet

European study of frequency of participation of adolescents with and without cerebral palsy

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Decline in severe spastic cerebral palsy at term in Denmark 1999-2007

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Pediatric autoimmune encephalitis in Denmark during 2011-17: A nationwide multicenter population-based cohort study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. SLC35A2-related congenital disorder of glycosylation: Defining the phenotype

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. EEG with extreme delta brush in young female with methotrexate neurotoxicity supports NMDA receptor involvement

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Children with dyskinetic cerebral palsy are severely affected as compared to bilateral spastic cerebral palsy

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Infections seem to be more frequent before onset of pediatric multiple sclerosis: A Danish nationwide nested case-control study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. The landscape of epilepsy-related GATOR1 variants

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Decline in severe spastic cerebral palsy at term in Denmark 1999-2007

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  5. Electromagnetic source imaging in presurgical workup of patients with epilepsy: A prospective study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  • Susan Ishøy Michelsen
  • Esben M Flachs
  • Mogens T Damsgaard
  • Jacqueline Parkes
  • Kathryn Parkinson
  • Marion Rapp
  • Catherine Arnaud
  • Malin Nystrand
  • Allan Colver
  • Jerome Fauconnier
  • Heather O Dickinson
  • Marco Marcelli
  • Peter Uldall
Vis graf over relationer

Children with cerebral palsy participate less in everyday activities than children in the general populations. During adolescence, rapid physical and psychological changes occur which may be more difficult for adolescents with impairments. Within the European SPARCLE project we measured frequency of participation of adolescents with cerebral palsy by administering the Questionnaire of Young People's Participation to 667 adolescents with cerebral palsy or their parents from nine European regions and to 4666 adolescents from the corresponding general populations. Domains and single items were analysed using respectively linear and logistic regression. Adolescents with cerebral palsy spent less time with friends and had less autonomy in their daily life than adolescents in the general populations. Adolescents with cerebral palsy participated much less in sport but played electronic games at least as often as adolescents in the general populations. Severity of motor and intellectual impairment had a significant impact on frequency of participation, the more severely impaired being more disadvantaged. Adolescents with an only slight impairment participated in some domains as often as adolescents in the general populations. Regional variation existed. For example adolescents with cerebral palsy in central Italy were most disadvantaged according to decisional autonomy, while adolescents with cerebral palsy in east Denmark and northern England played sports as often as their general populations. Participation is an important health outcome. Personal and environmental predictors of participation of adolescents with cerebral palsy need to be identified in order to design interventions directed to such predictors; and in order to inform the content of services.

OriginalsprogEngelsk
TidsskriftEuropean journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society
Vol/bind18
Udgave nummer3
Sider (fra-til)282-294
ISSN1090-3798
DOI
StatusUdgivet - 2014

ID: 43624778