Who are in and who are not? Characteristics of patients with inflammatory rheumatic diseases accepting an online system for remotely entering patient reported outcomes. Experience from the Danish DANBIO registry

Bente Glintborg, Dorte Vendelbo Jensen, Lene Terslev, Oliver Hendricks, Mikkel Østergaard, Simon Horskjær Rasmussen, Mogens Pfeiffer-Jensen, Thomas Adelsten, A Colic, Kamilla Danebod, Malene Kildemand, Anne Gitte Loft, Heidi Lausten Munk, J. K. Pedersen, René Østgård, Christian Møller Sørensen, Niels Steen Krogh, Jette Nørgaard Agerbo, Connie Ziegler, Merete Lund Hetland

Abstract

Background Digital solutions for online monitoring of chronic diseases are increasingly implemented in health care, but not all patients might have access, skills, or interest in using them. Fueled by the COVID-19 pandemic and the urgent need for remote consultations, an online website to enter patient-reported outcomes (PROs) from home (DANBIO-from-home, https://danbio.dk) was implemented on May 15th 2020 for patients with inflammatory rheumatic diseases (IRD) followed in the Danish nationwide DANBIO registry.
Original languageEnglish
Publication date2022
Publication statusPublished - 2022
EventEULAR 2022 - Copenhagen
Duration: 1 Jun 20224 Jun 2022

Conference

ConferenceEULAR 2022
CityCopenhagen
Period01/06/202204/06/2022

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