TY - JOUR
T1 - Users' perspective on rehabilitation interventions for young adult cancer survivors
T2 - A group concept mapping study
AU - Aagesen, Maria
AU - Pilegaard, Marc Sampedro
AU - Hauken, May Aasebø
AU - Waehrens, Eva Elisabet Ejlersen
AU - la Cour, Karen
N1 - © 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.
PY - 2022/11
Y1 - 2022/11
N2 - OBJECTIVE: We aim to identify and prioritise rehabilitation interventions to strengthen participation in everyday life for young adult cancer survivors (YACS) between 18 and 39 years, involving the perspectives of YACS and relevant stakeholders.METHODS: A group concept mapping study was conducted in Denmark from 2019 to 2020. Online, participants generated and sorted ideas followed by rating their importance. Multidimensional scaling followed by hierarchical cluster analyses were applied to generate a cluster rating map of the prioritised interventions, which participants validated at a face-to-face meeting. Finally, a concluding conceptual model of prioritised rehabilitation intervention for YACS was developed.RESULTS: The study involved 25 YACS, three family members and 31 professionals working with YACS. The conceptual model included 149 ideas classified into eight intervention components created by the participants: (1) Treatment and possibilities within the social and healthcare system, (2) Rights and Finance, (3) Education and Work, (4) Psychological problems, (5) Body and Everyday Life, (6) Peer-to-peer, (7) Sexuality and Relationships and (8) Family and Friends. All components were rated equally important, whereby 17 ideas across the eight components were rated very important.CONCLUSION: This study indicates that rehabilitation of YACS should be composed of eight equally important intervention components requiring an interdisciplinary approach.
AB - OBJECTIVE: We aim to identify and prioritise rehabilitation interventions to strengthen participation in everyday life for young adult cancer survivors (YACS) between 18 and 39 years, involving the perspectives of YACS and relevant stakeholders.METHODS: A group concept mapping study was conducted in Denmark from 2019 to 2020. Online, participants generated and sorted ideas followed by rating their importance. Multidimensional scaling followed by hierarchical cluster analyses were applied to generate a cluster rating map of the prioritised interventions, which participants validated at a face-to-face meeting. Finally, a concluding conceptual model of prioritised rehabilitation intervention for YACS was developed.RESULTS: The study involved 25 YACS, three family members and 31 professionals working with YACS. The conceptual model included 149 ideas classified into eight intervention components created by the participants: (1) Treatment and possibilities within the social and healthcare system, (2) Rights and Finance, (3) Education and Work, (4) Psychological problems, (5) Body and Everyday Life, (6) Peer-to-peer, (7) Sexuality and Relationships and (8) Family and Friends. All components were rated equally important, whereby 17 ideas across the eight components were rated very important.CONCLUSION: This study indicates that rehabilitation of YACS should be composed of eight equally important intervention components requiring an interdisciplinary approach.
KW - Young Adult
KW - Humans
KW - Cancer Survivors
KW - Family
KW - Cluster Analysis
KW - Neoplasms/psychology
UR - http://www.scopus.com/inward/record.url?scp=85139474156&partnerID=8YFLogxK
U2 - 10.1111/ecc.13734
DO - 10.1111/ecc.13734
M3 - Journal article
C2 - 36218020
VL - 31
SP - e13734
JO - European journal of cancer Care
JF - European journal of cancer Care
SN - 0961-5423
IS - 6
M1 - e13734
ER -