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The Capital Region of Denmark - a part of Copenhagen University Hospital
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The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care

Research output: Contribution to journalJournal articleResearchpeer-review

DOI

  1. Traveling health-promoting infrastructures: A meta-ethnographic analysis

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  2. Lifestylisation of the social: The government of diabetes care in Denmark

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  3. Prevention of opportunistic non-communicable diseases

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  4. The uses and implications of standards in general practice consultations

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  5. Negotiating hearing disability and hearing disabled identities

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  1. "Ask a Doctor About Coronavirus": How Physicians on Social Media Can Provide Valid Health Information During a Pandemic

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Noise as Dysappearance: Attuning to a Life with Type 1 Diabetes

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  3. Chronic disruptions: How parents with a young child with type 1 diabetes navigate self-care and negotiate uncertainty in daily life

    Research output: Contribution to conferenceConference abstract for conferenceCommunication

  4. Sygdomsfællesskaber på Facebook

    Research output: Contribution to journalJournal articleResearchpeer-review

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Danish adults with type 1 diabetes value peer-to-peer interaction through the social media platform Facebook as a way to quickly exchange knowledge on essential everyday self-care for chronic illness. In this praxiographic study, following informants into online and offline social dimensions, I explore how they use Facebook to exchange self-care knowledge based on practical experiments and negotiations between bodies, technologies and daily lives. When in doubt about how to self-care on a daily basis, Danish adults with type 1 diabetes look to Facebook for inspiration and peer support. A synergistic process of online searching and sharing and offline tinkering with self-care generates person-centred knowledge about how to live with illness that is situated to individual needs and unique daily lives. Facebook can be viewed as an emergent space for biosociality through which knowledge about how to self-care become co-constructed by peers based on their pragmatic experiences of self-care on a daily and ongoing basis.

Original languageEnglish
JournalHealth (United Kingdom)
Volume24
Issue number2
Pages (from-to)152-168
Number of pages17
ISSN1363-4593
DOIs
Publication statusPublished - Mar 2020

    Research areas

  • facebook, online biosociality, patient knowledge, praxiography, tinkering, type 1 diabetes

ID: 55180771