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The Capital Region of Denmark - a part of Copenhagen University Hospital
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The Needs and Care Experiences of Adolescents and Young Adults Treated for Cancer in Adult Surgery Clinics: A Qualitative Study

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DOI

  1. Impact of Service User Involvement from the Perspective of Adolescents and Young Adults with Cancer Experience

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Facing the Maze: Young Cancer Survivors' Return to Education and Work-A Professional Expert Key Informant Study

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  3. "On Your Own": Adolescent and Young Adult Cancer Survivors' Experience of Managing Return to Secondary or Higher Education in Denmark

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  1. Am I going to die now? Experiences of hospitalisation and subsequent life after being diagnosed with aortic dissection

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  2. In the eye of the hurricane - a qualitative study on what is at stake for close family members to patients hospitalized with COVID-19

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  3. Can patients' narratives in nursing enhance the healing process?

    Research output: Contribution to journalJournal articleResearchpeer-review

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Purpose: Adolescents and young adults (AYAs) with cancer hospitalized in adult surgery clinics are an overlooked group of patients. They are a minority hospitalized among elderly surgical patients, and the surroundings and care are designed with older patients in mind. A growing body of research focuses on AYAs' experiences of cancer care. However, studies exploring care experiences in terms of in-patient surgery treatment are still needed. Hence, the purpose of the study was to explore the needs and care experiences of AYAs, 15-29 years of age, treated for cancer in adult surgery clinics. Methods: This qualitative study was based on semistructured interviews with 15 AYAs with cancer from seven surgery clinics at Rigshospitalet, Copenhagen University Hospital, Denmark. Data were analyzed and interpreted using inductive content analysis. The Danish Data Protection Agency approved the study (project no.: 05617). Results: Three themes were identified: (1) being the black sheep - experiences of being young in an adult environment, (2) the significant nurse - experiences of the essential relationship between AYAs and the nurses, and (3) the wounded body - experiences of how the physically changed body affects the mind. Conclusions: Our findings showed that the psychosocial needs of AYAs with cancer hospitalized in adult surgery clinics were not being adequately met. Initiatives are needed to improve the psychological and social well-being of this vulnerable patient group, while hospitalized for treatment in surgery clinics.

Original languageEnglish
JournalJournal of Adolescent and Young Adult Oncology
ISSN2156-5333
DOIs
Publication statusPublished - 2021

    Research areas

  • experiences, psychosocial, qualitative research, surgical treatment, unmet needs

ID: 65560619