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The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

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Paediatric Rheumatology International Trials Organisation (PRINTO) 2018, 'The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, no. Suppl 1, pp. 131-138. https://doi.org/10.1007/s00296-018-3946-z

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Paediatric Rheumatology International Trials Organisation (PRINTO). / The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38, No. Suppl 1. pp. 131-138.

Bibtex

@article{10d35173799f47708ad17e54ca122fd8,
title = "The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)",
abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.",
keywords = "Adolescent, Age of Onset, Arthritis, Juvenile/diagnosis, Case-Control Studies, Child, Child, Preschool, Cultural Characteristics, Denmark, Disability Evaluation, Female, Health Status, Humans, Male, Parents/psychology, Patient Reported Outcome Measures, Patients/psychology, Predictive Value of Tests, Prognosis, Psychometrics, Quality of Life, Reproducibility of Results, Rheumatology/methods, Translating",
author = "Susan Nielsen and Troels Herlin and {Estmann Christensen}, Anne and Marek Zak and Charlotte Myrup and Mia Glerup and Alessandro Consolaro and Francesca Bovis and Nicolino Ruperto and {Paediatric Rheumatology International Trials Organisation (PRINTO)}",
year = "2018",
doi = "10.1007/s00296-018-3946-z",
language = "English",
volume = "38",
pages = "131--138",
journal = "Rheumatology International",
issn = "0172-8172",
publisher = "Springer",
number = "Suppl 1",

}

RIS

TY - JOUR

T1 - The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

AU - Nielsen, Susan

AU - Herlin, Troels

AU - Estmann Christensen, Anne

AU - Zak, Marek

AU - Myrup, Charlotte

AU - Glerup, Mia

AU - Consolaro, Alessandro

AU - Bovis, Francesca

AU - Ruperto, Nicolino

AU - Paediatric Rheumatology International Trials Organisation (PRINTO)

PY - 2018

Y1 - 2018

N2 - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

KW - Adolescent

KW - Age of Onset

KW - Arthritis, Juvenile/diagnosis

KW - Case-Control Studies

KW - Child

KW - Child, Preschool

KW - Cultural Characteristics

KW - Denmark

KW - Disability Evaluation

KW - Female

KW - Health Status

KW - Humans

KW - Male

KW - Parents/psychology

KW - Patient Reported Outcome Measures

KW - Patients/psychology

KW - Predictive Value of Tests

KW - Prognosis

KW - Psychometrics

KW - Quality of Life

KW - Reproducibility of Results

KW - Rheumatology/methods

KW - Translating

U2 - 10.1007/s00296-018-3946-z

DO - 10.1007/s00296-018-3946-z

M3 - Journal article

C2 - 29637339

VL - 38

SP - 131

EP - 138

JO - Rheumatology International

JF - Rheumatology International

SN - 0172-8172

IS - Suppl 1

ER -

ID: 58929263