Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Keyphrases

• Clinical Data 100%
• Primary Ciliary Dyskinesia 100%
• Patient Health Questionnaire 20%
• Clinical Assessment 10%
• Missing Data 10%
• Patient-completed 10%
• Medical Representative 10%
• Routine Care 10%
• Standard of Care 10%
• International Research 10%
• National Monitoring 10%
• Clinical Data Collection 10%
• Delphi Method 10%
• Research-based 10%
• Routine Follow-up 10%
• Data Standardization 10%
• Local Practices 10%
• Annual Review 10%
• Multidisciplinary Groups 10%
• Prospective Data Collection 10%
• Retrospective Chart Review 10%
• COST Action 10%
• Research Electronic Data Capture (REDCap) 10%
• Modular Structure 10%
• Global Monitoring 10%
• Phenotype Severity 10%
• Action Network 10%
• Group Representative 10%
• Existing Form 10%
• Clinical Decision-making 10%
• Multiple Languages 10%
• Local Research 10%
• Item Content 10%

Computer Science

• Clinical Data 100%
• Decision-Making 33%
• Collected Data 33%
• Research Quality 33%
• Multiple Language 33%
• Literature Review 33%
• Action Network 33%
• Local Practice 33%

Medicine and Dentistry

• Primary Ciliary Dyskinesia 100%
• Clinical Assessment 10%
• Physical Examination 10%
• Clinical Decision Making 10%
• Clinical Data Collection 10%