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The Capital Region of Denmark - a part of Copenhagen University Hospital
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Sociodemographic, personal, and disease-related determinants of referral to patient-reported outcome-based follow-up of remote outpatients: a prospective cohort study

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  • Liv Marit Valen Schougaard
  • Annette de Thurah
  • Jakob Christensen
  • Kirsten Lomborg
  • Helle Terkildsen Maindal
  • Caroline Trillingsgaard Mejdahl
  • Jesper Medom Vestergaard
  • Trine Nøhr Winding
  • Karin Biering
  • Niels Henrik Hjollund
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PURPOSE: We examined the association between sociodemographic, personal, and disease-related determinants and referral to a new model of health care that uses patient-reported outcomes (PRO) measures for remote outpatient follow-up (PRO-based follow-up).

METHODS: We conducted a prospective cohort study among outpatients with epilepsy at the Department of Neurology at Aarhus University Hospital, Denmark. Included were all persons aged ≥ 15 years visiting the department for the first time during the period from May 2016 to May 2018. Patients received a questionnaire containing questions about health literacy, self-efficacy, patient activation, well-being, and general health. We also collected data regarding sociodemographic status, labour market affiliation, and co-morbidity from nationwide registers. Associations were analysed as time-to-event using the pseudo-value approach. Missing data were handled using multiple imputations.

RESULTS: A total of 802 eligible patients were included in the register-based analyses and 411 patients (51%) responded to the questionnaire. The results based on data from registers indicated that patients were less likely to be referred to PRO-based follow-up if they lived alone, had low education or household income, received temporary or permanent social benefits, or if they had a psychiatric diagnosis. The results based on data from the questionnaire indicated that patients were less likely to be referred to PRO-based follow-up if they reported low levels of health literacy, self-efficacy, patient activation, well-being, or general health.

CONCLUSION: Both self-reported and register-based analyses indicated that socioeconomically advantaged patients were referred more often to PRO-based follow-up than socioeconomically disadvantaged patients.

Original languageEnglish
JournalQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Volume29
Issue number5
Pages (from-to)1335-1347
Number of pages13
ISSN0962-9343
DOIs
Publication statusPublished - May 2020
Externally publishedYes

    Research areas

  • Ambulatory care, Cohort study, Outpatient clinics, hospital, Patient-reported outcome measures, Referral and consultation, Patient Participation/psychology, Prospective Studies, Follow-Up Studies, Humans, Middle Aged, Male, Self Report/statistics & numerical data, Quality of Life/psychology, Young Adult, Chronic Disease/therapy, Aged, 80 and over, Adult, Female, Surveys and Questionnaires, Patient Reported Outcome Measures, Epilepsy/psychology, Social Class, Outpatients, Mental Disorders, Adolescent, Health Literacy/statistics & numerical data, Denmark, Aged, Referral and Consultation, Health Status

ID: 58891484