Research
Print page Print page
Switch language
The Capital Region of Denmark - a part of Copenhagen University Hospital
Published

Research agenda for life-threatening cancer

Research output: Contribution to journalJournal articleResearchpeer-review

DOI

  1. Patient involvement in comprehensive, complex cancer surgery: Perspectives of patients, relatives and health professionals

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Classmates motivate childhood cancer patients to participate in physical activity during treatment: A qualitative study

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Pediatric cancer families' participation in whole-genome sequencing research in Denmark: Parent perspectives

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. Needs and preferences among patients with high-grade glioma and their caregivers: a longitudinal mixed methods study

    Research output: Contribution to journalJournal articleResearchpeer-review

  5. Development of health-related quality of life and symptoms in patients with advanced cancer in Greenland

    Research output: Contribution to journalJournal articleResearchpeer-review

  1. Patients' experiences and social support needs following the diagnosis and initial treatment of acute leukemia - A qualitative study

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. A three-year national follow-up study on the development of community-level cancer rehabilitation in Denmark

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Clarithromycin added to bortezomib-cyclophosphamide-dexamethasone impairs health-related quality of life in multiple myeloma patients

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. Bereaved caregivers of patients with high-grade glioma: a systematic review

    Research output: Contribution to journalReviewResearchpeer-review

View graph of relations

OBJECTIVES: The aim of this study was to identify future research agendas that reflect the concerns and unexplored areas of interest for patients with life-threatening cancer, their relatives and the clinical specialists during the cancer trajectory.

METHODS: Six focus group discussions were conducted addressing two different cancer trajectories: primary malignant brain tumour and acute leukaemia. For each of the two cancer trajectories, separate FGIs were carried out with patients, relatives and clinical specialists to identify important concerns, challenges and uncertainties. The FGIs were video/audio-recorded, transcribed and thematically analysed within and across FGI groups to construct research topics. Finally, the literature was reviewed for existing evidence concerning the identified research topic(s) to strengthen the suggested research agendas.

RESULTS: New research agendas related to high-grade glioma brain tumour and acute leukaemia with corresponding research questions were formulated within the topics of supportive care/palliation, education/information, rehabilitation, complementary and alternative therapy and organization of health care.

CONCLUSION: User involvement in identifying research agendas has the potential to improve quality of care for patients and caregivers across the cancer trajectory, while minimizing the gap in research between the healthcare user and healthcare provider.

Original languageEnglish
JournalEuropean Journal of Cancer Care
Volume28
Issue number1
Pages (from-to)e12935
ISSN0961-5423
DOIs
Publication statusPublished - 2019

ID: 55506311