Research
Print page Print page
Switch language
The Capital Region of Denmark - a part of Copenhagen University Hospital
Published

Parents' journey caring for a preterm infant until discharge from hospital-based neonatal home care-A challenging process to cope with

Research output: Contribution to journalJournal articleResearchpeer-review

DOI

  1. Implementing mandatory early warning scoring impacts nurses' practice of documenting free text notes

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. “It is two worlds” cross-sectoral nurse collaboration related to care transitions: A qualitative study

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Lived experiences and quality of life after gynaecological cancer-An integrative review

    Research output: Contribution to journalReviewResearchpeer-review

  1. Evaluation of NICU Nurses' Competence in Pain Assessment 5 Years After Implementation of the COMFORTneo Scale

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Exploring the Influence of a Smartphone App (Young with Diabetes) on Young People's Self-Management: Qualitative Study

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. 'Now she has become my daughter': parents' early experiences of skin-to-skin contact with extremely preterm infants

    Research output: Contribution to journalJournal articleResearchpeer-review

View graph of relations

AIMS AND OBJECTIVES: To present parents' lived experience of having a preterm infant cared for at the neonatal unit until discharge from hospital-based neonatal home care (HNHC).

BACKGROUND: Becoming a parent to a preterm infant has been reported as an experience that may influence the parent's lifeworld also after discharge. Interventions have been implemented at the NICUs, for example introduction of family-centred care aiming to reduce parent-infant separation, increased integration of the parents, to support them in their altered parental role.

DESIGN: A descriptive phenomenological interview study.

METHODS: Six parent couples at a NICU in Sweden were included and interviewed individually after discharge from HNHC. The interviews were analysed from the perspective of caring sciences using a descriptive phenomenological method. The study followed the consolidated criteria for reporting qualitative research (COREQ) checklist.

RESULT: The journey from birth to discharge from hospital-based neonatal home care affected the parents' lifeworld. The parents' experiences differed. Mothers experienced more physiological reactions that triggered feelings of existential loneliness and guilt and difficulties in combining the role of mother with partner. The fathers faced conflicts managing their partners' demands, family challenges and employers who claimed their time and energy, which negatively affected their transition into fatherhood. Both mothers and fathers experienced ambivalent feelings in the relationships with the professional staff, which was more strongly expressed by the mothers.

CONCLUSION: It is important for healthcare providers to help parents clarify their individual needs and values in caring for a preterm infant to help them achieve parental and family well-being.

RELEVANCE TO CLINICAL PRACTICE: These findings can guide healthcare providers to help parents improve care for their preterm infants in the NICU. Integrating a person-centred approach such as supportive person-centred dialogues focused on parents' individual needs might be one way to support parents.

Original languageEnglish
JournalJournal of Clinical Nursing
Volume28
Issue number15-16
Pages (from-to)2966-2978
Number of pages13
ISSN0962-1067
DOIs
Publication statusPublished - Aug 2019

    Research areas

  • Adaptation, Psychological, Adult, Fathers/psychology, Female, Home Care Services, Hospital-Based/organization & administration, Humans, Infant, Infant Care/psychology, Infant, Newborn, Infant, Premature, Male, Mothers/psychology, Parenting/psychology, Pregnancy, Qualitative Research, Sweden

ID: 58090148