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The Capital Region of Denmark - a part of Copenhagen University Hospital
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Needs for everyday life support for brain tumour patients' relatives: systematic literature review

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  1. Patient involvement in comprehensive, complex cancer surgery: Perspectives of patients, relatives and health professionals

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  2. Classmates motivate childhood cancer patients to participate in physical activity during treatment: A qualitative study

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  3. Research agenda for life-threatening cancer

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  4. Pediatric cancer families' participation in whole-genome sequencing research in Denmark: Parent perspectives

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  5. Needs and preferences among patients with high-grade glioma and their caregivers: a longitudinal mixed methods study

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  1. Cell-free DNA in newly diagnosed patients with glioblastoma - a clinical prospective feasibility study

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  2. Identification of Tumor Antigens Among the HLA Peptidomes of Glioblastoma Tumors and Plasma

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  3. Withdrawal: Identification of tumor antigens among the HLA peptidomes of glioblastoma tumors and plasma

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  4. Actively personalized vaccination trial for newly diagnosed glioblastoma

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  5. Extracranial metastases in glioblastoma-Two case stories

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The purpose of this paper is to undertake a review of the everyday lives and the need for support felt by relatives of adults with malignant cerebral glioma. Through electronic literature searches we identified studies with qualitative, quantitative or mixed method designs. Fourteen studies were identified. They indicated that a relative often assumes the caregiver's role, taking over responsibility for the patient's illness and survival, and that the relative is often overwhelmingly exhausted by this task. The ever-changing circumstances left the relatives fearful, anxious and apprehensive. The relatives lacked information about how to provide day-to-day care and how to manage psychoses and neuropsychiatric problems at home. Likewise, they needed help from the professionals to talk with each other about potentially reduced life expectancy. Most relatives appeared to value specialist nurse support highly, and they found support groups helpful. Relatively few studies were identified, and extant research was found to be diverse in purpose, study design and study population. The majority of the studies focused only on the parts of the relatives' everyday lives in which they were taking care of and supporting the patient. Further research focusing on the impact of the illness on different part of relative's everyday life is needed.
Original languageEnglish
JournalEuropean Journal of Cancer Care
Volume20
Issue number1
Pages (from-to)33-43
Number of pages11
ISSN0961-5423
DOIs
Publication statusPublished - 2011

    Research areas

  • Activities of Daily Living, Adult, Aged, Brain Neoplasms, Caregivers, Family, Health Services Needs and Demand, Humans, Middle Aged, Social Support, Stress, Psychological

ID: 33160418