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The Capital Region of Denmark - a part of Copenhagen University Hospital
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In a vigilant state of chronic disruption: how parents with a young child with type 1 diabetes negotiate events and moments of uncertainty

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Living as a parent and self‐care surrogate of a young child with type 1 diabetes (T1D) is demanding and a disruption to ‘normal’ routinised daily living. Research has mainly focused on the time of diagnosis as a one‐time biographical disruption. In this article, we will show how, in the case of families with young children with T1D, the biographical disruption can be viewed as a continuous state of vigilance that affects family functioning and ‘normal’ living. We will show this by focusing on the temporal events and moments that keep the families in a state of what we will term ‘chronic disruption’. The events are the transitions from hospitalisation to home, home to nursery, nursery to daycare, and daycare to school and preparations for social activities concerning the child. The moments are more fluid, ranging from daily interruptions when daycare workers and teachers call parents with doubts about self‐care to negotiations with institutions and municipalities and a constant state of worry.
Original languageEnglish
Article numberhttps://doi.org/10.1111/1467-9566.13123
JournalSociology of Health and Illness
Volume42
Issue number6
Pages (from-to)1473-1487
Number of pages15
ISSN0141-9889
DOIs
Publication statusPublished - 1 Jul 2020

    Research areas

  • diabetes, disruption, everyday life, family, online–offline ethnography

ID: 61354775