Research
Print page Print page
Switch language
The Capital Region of Denmark - a part of Copenhagen University Hospital
Published

Immune thrombocytopenia (ITP) World Impact Survey(I-WISh): impact of ITP on health-related quality of life

Research output: Contribution to journalJournal articleResearchpeer-review

Harvard

Cooper, N, Kruse, A, Kruse, C, Watson, S, Morgan, M, Provan, D, Ghanima, W, Arnold, DM, Tomiyama, Y, Santoro, C, Michel, M, Laborde, S, Lovrencic, B, Hou, M, Bailey, T, Taylor-Stokes, G, Haenig, J & Bussel, JB 2021, 'Immune thrombocytopenia (ITP) World Impact Survey(I-WISh): impact of ITP on health-related quality of life', American Journal of Hematology, vol. 96, no. 2, pp. 199-207. https://doi.org/10.1002/ajh.26036

APA

Cooper, N., Kruse, A., Kruse, C., Watson, S., Morgan, M., Provan, D., Ghanima, W., Arnold, D. M., Tomiyama, Y., Santoro, C., Michel, M., Laborde, S., Lovrencic, B., Hou, M., Bailey, T., Taylor-Stokes, G., Haenig, J., & Bussel, J. B. (2021). Immune thrombocytopenia (ITP) World Impact Survey(I-WISh): impact of ITP on health-related quality of life. American Journal of Hematology, 96(2), 199-207. https://doi.org/10.1002/ajh.26036

CBE

Cooper N, Kruse A, Kruse C, Watson S, Morgan M, Provan D, Ghanima W, Arnold DM, Tomiyama Y, Santoro C, Michel M, Laborde S, Lovrencic B, Hou M, Bailey T, Taylor-Stokes G, Haenig J, Bussel JB. 2021. Immune thrombocytopenia (ITP) World Impact Survey(I-WISh): impact of ITP on health-related quality of life. American Journal of Hematology. 96(2):199-207. https://doi.org/10.1002/ajh.26036

MLA

Vancouver

Author

Cooper, Nichola ; Kruse, Alexandra ; Kruse, Caroline ; Watson, Shirley ; Morgan, Mervyn ; Provan, Drew ; Ghanima, Waleed ; Arnold, Donald M ; Tomiyama, Yoshiaki ; Santoro, Cristina ; Michel, Marc ; Laborde, Serge ; Lovrencic, Barbara ; Hou, Ming ; Bailey, Tom ; Taylor-Stokes, Gavin ; Haenig, Jens ; Bussel, James B. / Immune thrombocytopenia (ITP) World Impact Survey(I-WISh) : impact of ITP on health-related quality of life. In: American Journal of Hematology. 2021 ; Vol. 96, No. 2. pp. 199-207.

Bibtex

@article{6c1d11139cbd48f686f0adee5fc3f893,
title = "Immune thrombocytopenia (ITP) World Impact Survey(I-WISh): impact of ITP on health-related quality of life",
abstract = "Immune thrombocytopenia (ITP) has a substantial, multifaceted impact on patients' health-related quality of life (HRQoL). Data describing which aspects of ITP physicians and patients perceive as having the greatest impact are limited. The ITP World Impact Survey (I-WISh) was a cross-sectional survey, including 1507 patients and 472 physicians, to establish the impact of ITP on HRQoL and productivity from patient and physician perspectives. Patients reported that ITP reduced their energy levels (85% of patients), capacity to exercise (77%), and limited their ability to perform daily tasks (75%). Eighty percent of physicians reported that ITP symptoms reduced patient HRQoL, with 66% reporting ITP-related fatigue substantially reduced patient HRQoL. Patients believed ITP had a substantial impact on emotional well-being (49%) and 63% worried their condition would worsen. Because of ITP, 49% of patients had already reduced, or seriously considered reducing their working hours, and 29% had considered terminating their employment. Thirty-six percent of patients employed at the time of the survey felt ITP decreased their work productivity, while 51% of patients with high/very high symptom burden reported that ITP affected their productivity. Note, I-WISh demonstrated substantive impact of ITP on patients' HRQoL both directly for patients and from the viewpoint of their physicians. Patients reported reduced energy levels, expressed fears their condition might worsen, and those who worked experienced reduced productivity. Physicians should be aware not only of platelet counts and bleeding but also the multi-dimensional impact of ITP on patients' lives as an integral component of disease management.",
author = "Nichola Cooper and Alexandra Kruse and Caroline Kruse and Shirley Watson and Mervyn Morgan and Drew Provan and Waleed Ghanima and Arnold, {Donald M} and Yoshiaki Tomiyama and Cristina Santoro and Marc Michel and Serge Laborde and Barbara Lovrencic and Ming Hou and Tom Bailey and Gavin Taylor-Stokes and Jens Haenig and Bussel, {James B}",
note = "{\textcopyright} 2020 The Authors. American Journal of Hematology published by Wiley Periodicals LLC.",
year = "2021",
month = feb,
day = "1",
doi = "10.1002/ajh.26036",
language = "English",
volume = "96",
pages = "199--207",
journal = "American Journal of Hematology",
issn = "0361-8609",
publisher = "John/Wiley & Sons, Inc. John/Wiley & Sons Ltd",
number = "2",

}

RIS

TY - JOUR

T1 - Immune thrombocytopenia (ITP) World Impact Survey(I-WISh)

T2 - impact of ITP on health-related quality of life

AU - Cooper, Nichola

AU - Kruse, Alexandra

AU - Kruse, Caroline

AU - Watson, Shirley

AU - Morgan, Mervyn

AU - Provan, Drew

AU - Ghanima, Waleed

AU - Arnold, Donald M

AU - Tomiyama, Yoshiaki

AU - Santoro, Cristina

AU - Michel, Marc

AU - Laborde, Serge

AU - Lovrencic, Barbara

AU - Hou, Ming

AU - Bailey, Tom

AU - Taylor-Stokes, Gavin

AU - Haenig, Jens

AU - Bussel, James B

N1 - © 2020 The Authors. American Journal of Hematology published by Wiley Periodicals LLC.

PY - 2021/2/1

Y1 - 2021/2/1

N2 - Immune thrombocytopenia (ITP) has a substantial, multifaceted impact on patients' health-related quality of life (HRQoL). Data describing which aspects of ITP physicians and patients perceive as having the greatest impact are limited. The ITP World Impact Survey (I-WISh) was a cross-sectional survey, including 1507 patients and 472 physicians, to establish the impact of ITP on HRQoL and productivity from patient and physician perspectives. Patients reported that ITP reduced their energy levels (85% of patients), capacity to exercise (77%), and limited their ability to perform daily tasks (75%). Eighty percent of physicians reported that ITP symptoms reduced patient HRQoL, with 66% reporting ITP-related fatigue substantially reduced patient HRQoL. Patients believed ITP had a substantial impact on emotional well-being (49%) and 63% worried their condition would worsen. Because of ITP, 49% of patients had already reduced, or seriously considered reducing their working hours, and 29% had considered terminating their employment. Thirty-six percent of patients employed at the time of the survey felt ITP decreased their work productivity, while 51% of patients with high/very high symptom burden reported that ITP affected their productivity. Note, I-WISh demonstrated substantive impact of ITP on patients' HRQoL both directly for patients and from the viewpoint of their physicians. Patients reported reduced energy levels, expressed fears their condition might worsen, and those who worked experienced reduced productivity. Physicians should be aware not only of platelet counts and bleeding but also the multi-dimensional impact of ITP on patients' lives as an integral component of disease management.

AB - Immune thrombocytopenia (ITP) has a substantial, multifaceted impact on patients' health-related quality of life (HRQoL). Data describing which aspects of ITP physicians and patients perceive as having the greatest impact are limited. The ITP World Impact Survey (I-WISh) was a cross-sectional survey, including 1507 patients and 472 physicians, to establish the impact of ITP on HRQoL and productivity from patient and physician perspectives. Patients reported that ITP reduced their energy levels (85% of patients), capacity to exercise (77%), and limited their ability to perform daily tasks (75%). Eighty percent of physicians reported that ITP symptoms reduced patient HRQoL, with 66% reporting ITP-related fatigue substantially reduced patient HRQoL. Patients believed ITP had a substantial impact on emotional well-being (49%) and 63% worried their condition would worsen. Because of ITP, 49% of patients had already reduced, or seriously considered reducing their working hours, and 29% had considered terminating their employment. Thirty-six percent of patients employed at the time of the survey felt ITP decreased their work productivity, while 51% of patients with high/very high symptom burden reported that ITP affected their productivity. Note, I-WISh demonstrated substantive impact of ITP on patients' HRQoL both directly for patients and from the viewpoint of their physicians. Patients reported reduced energy levels, expressed fears their condition might worsen, and those who worked experienced reduced productivity. Physicians should be aware not only of platelet counts and bleeding but also the multi-dimensional impact of ITP on patients' lives as an integral component of disease management.

UR - http://www.scopus.com/inward/record.url?scp=85097736208&partnerID=8YFLogxK

U2 - 10.1002/ajh.26036

DO - 10.1002/ajh.26036

M3 - Journal article

C2 - 33107998

VL - 96

SP - 199

EP - 207

JO - American Journal of Hematology

JF - American Journal of Hematology

SN - 0361-8609

IS - 2

ER -

ID: 61127364