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The Capital Region of Denmark - a part of Copenhagen University Hospital
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International multi-site survey on the use of online support groups in bipolar disorder

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  • Rita Bauer
  • Jörn Conell
  • Tasha Glenn
  • Martin Alda
  • Raffaella Ardau
  • Bernhard T Baune
  • Michael Berk
  • Yuly Bersudsky
  • Amy Bilderbeck
  • Alberto Bocchetta
  • Letizia Bossini
  • Angela M Paredes Castro
  • Eric Yat Wo Cheung
  • Caterina Chillotti
  • Sabine Choppin
  • Maria Del Zompo
  • Rodrigo Dias
  • Seetal Dodd
  • Anne Duffy
  • Bruno Etain
  • Andrea Fagiolini
  • Miryam Fernández Hernandez
  • Julie Garnham
  • John R Geddes
  • Jonas Gildebro
  • Ana Gonzalez-Pinto
  • Guy M Goodwin
  • Paul Grof
  • Hirohiko Harima
  • Stefanie Hassel
  • Chantal Henry
  • Diego Hidalgo-Mazzei
  • Vaisnvy Kapur
  • Girish Kunigiri
  • Beny Lafer
  • Erik Roj Larsen
  • Ute Lewitzka
  • Rasmus W Licht
  • Anne Hvenegaard Lund
  • Blazej Misiak
  • Patryk Piotrowski
  • Scott Monteith
  • Rodrigo Munoz
  • Takako Nakanotani
  • René E Nielsen
  • Claire O'Donovan
  • Yasushi Okamura
  • Yamima Osher
  • Andreas Reif
  • Philipp Ritter
  • Janusz K Rybakowski
  • Kemal Sagduyu
  • Brett Sawchuk
  • Elon Schwartz
  • Ângela M Scippa
  • Claire Slaney
  • Ahmad H Sulaiman
  • Kirsi Suominen
  • Aleksandra Suwalska
  • Peter Tam
  • Yoshitaka Tatebayashi
  • Leonardo Tondo
  • Eduard Vieta
  • Maj Vinberg
  • Biju Viswanath
  • Julia Volkert
  • Mark Zetin
  • Peter C Whybrow
  • Michael Bauer
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BACKGROUND: Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.

AIMS: To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.

METHODS: The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.

RESULTS AND CONCLUSIONS: The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.

Original languageEnglish
JournalNordic Journal of Psychiatry
Volume71
Issue number6
Pages (from-to)473-476
Number of pages4
ISSN0803-9488
DOIs
StatePublished - Aug 2017

    Research areas

  • Journal Article

ID: 51719716