FindZebra: a search engine for rare diseases

Radu Dragusin; Paula Petcu; Christina Lioma; Birger Larsen; Henrik L Jørgensen; Ingemar Cox; Lars Kai Hansen; Peter Ingwersen; Ole Winther

doi:10.1016/j.ijmedinf.2013.01.005

FindZebra: a search engine for rare diseases

Radu Dragusin, Paula Petcu, Christina Lioma, Birger Larsen, Henrik L Jørgensen, Ingemar Cox, Lars Kai Hansen, Peter Ingwersen, Ole Winther

77 Citations (Scopus)

Abstract

The web has become a primary information resource about illnesses and treatments for both medical and non-medical users. Standard web search is by far the most common interface to this information. It is therefore of interest to find out how well web search engines work for diagnostic queries and what factors contribute to successes and failures. Among diseases, rare (or orphan) diseases represent an especially challenging and thus interesting class to diagnose as each is rare, diverse in symptoms and usually has scattered resources associated with it.

Original language	English
Journal	International Journal of Medical Informatics
Volume	82
Issue number	6
Pages (from-to)	528-38
Number of pages	11
ISSN	1386-5056
DOIs	https://doi.org/10.1016/j.ijmedinf.2013.01.005
Publication status	Published - Jun 2013

Keywords

Consumer Health Information
Health Knowledge, Attitudes, Practice
Humans
Internet
Medical Informatics
Rare Diseases
Search Engine

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10.1016/j.ijmedinf.2013.01.005

Cite this

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T2 - a search engine for rare diseases

AU - Dragusin, Radu

AU - Petcu, Paula

AU - Lioma, Christina

AU - Larsen, Birger

AU - Jørgensen, Henrik L

AU - Cox, Ingemar

AU - Hansen, Lars Kai

AU - Ingwersen, Peter

AU - Winther, Ole

PY - 2013/6

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AB - The web has become a primary information resource about illnesses and treatments for both medical and non-medical users. Standard web search is by far the most common interface to this information. It is therefore of interest to find out how well web search engines work for diagnostic queries and what factors contribute to successes and failures. Among diseases, rare (or orphan) diseases represent an especially challenging and thus interesting class to diagnose as each is rare, diverse in symptoms and usually has scattered resources associated with it.

KW - Consumer Health Information

KW - Health Knowledge, Attitudes, Practice

KW - Humans

KW - Internet

KW - Medical Informatics

KW - Rare Diseases

KW - Search Engine

UR - https://www.scopus.com/pages/publications/84891650295

U2 - 10.1016/j.ijmedinf.2013.01.005

DO - 10.1016/j.ijmedinf.2013.01.005

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SP - 528

EP - 538

JO - International Journal of Medical Informatics

JF - International Journal of Medical Informatics

IS - 6

ER -

FindZebra: a search engine for rare diseases

Abstract

Keywords

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