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The Capital Region of Denmark - a part of Copenhagen University Hospital
Published

FindZebra: a search engine for rare diseases

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  1. Incorporating symptom data in longitudinal disease trajectories for more detailed patient stratification

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Unpacking telemonitoring work: Workload and telephone calls to patients in implanted cardiac device care

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. A qualitative study of COPD-patients' experience of a telemedicine intervention

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. Older patients' use of technology for a post-discharge nutritional intervention - A mixed-methods feasibility study

    Research output: Contribution to journalJournal articleResearchpeer-review

  5. MiBAlert-a new information tool to fight multidrug-resistant bacteria in the hospital setting

    Research output: Contribution to journalJournal articleResearchpeer-review

  1. Decreased plasma lipid levels in a statin-free Danish primary health care cohort between 2001 and 2018

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. The Circadian Clock Is Sustained in the Thyroid Gland of VIP Receptor 2 Deficient Mice

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Thyroid-stimulating hormone (TSH) is associated with 30-day mortality in hip fracture patients

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. The Association of Low Vitamin K Status with Mortality in a Cohort of 138 Hospitalized Patients with COVID-19

    Research output: Contribution to journalJournal articleResearchpeer-review

  5. Mortality among hip fracture patients infected with COVID-19 perioperatively

    Research output: Contribution to journalReviewResearchpeer-review

  • Radu Dragusin
  • Paula Petcu
  • Christina Lioma
  • Birger Larsen
  • Henrik L Jørgensen
  • Ingemar Cox
  • Lars Kai Hansen
  • Peter Ingwersen
  • Ole Winther
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The web has become a primary information resource about illnesses and treatments for both medical and non-medical users. Standard web search is by far the most common interface to this information. It is therefore of interest to find out how well web search engines work for diagnostic queries and what factors contribute to successes and failures. Among diseases, rare (or orphan) diseases represent an especially challenging and thus interesting class to diagnose as each is rare, diverse in symptoms and usually has scattered resources associated with it.
Original languageEnglish
JournalInternational Journal of Medical Informatics
Volume82
Issue number6
Pages (from-to)528-38
Number of pages11
ISSN1386-5056
DOIs
Publication statusPublished - Jun 2013

    Research areas

  • Consumer Health Information, Health Knowledge, Attitudes, Practice, Humans, Internet, Medical Informatics, Rare Diseases, Search Engine

ID: 42714659