TY - GEN
T1 - E-Health & Innovation to Overcome Barriers in Neuromuscular Diseases. Report from the 3rd eNMD Congress
T2 - Pisa, Italy, 29-30 October 2021
AU - Schirinzi, Erika
AU - Bochicchio, Mario Alessandro
AU - Lochmüller, Hanns
AU - Vissing, John
AU - Jordie-Diaz-Manerae, null
AU - Evangelista, Teresinha
AU - Plançon, Jean-Philippe
AU - Fanucci, Luca
AU - Marini, Marco
AU - Tonacci, Alessandro
AU - Mancuso, Michelangelo
AU - Segovia-Kueny, Sandrine
AU - Toscano, Antonio
AU - Angelini, Corrado
AU - Schoser, Benedikt
AU - Sacconi, Sabrina
AU - Siciliano, Gabriele
AU - e-NMD group
PY - 2024/5/8
Y1 - 2024/5/8
N2 - Neuromuscular diseases (NMDs), in their phenotypic heterogeneity, share quite invariably common issues that involve several clinical and socio-economical aspects, needing a deep critical analysis to develop better management strategies. From diagnosis to treatment and follow-up, the development of technological solutions can improve the detection of several critical aspects related to the diseases, addressing both the met and unmet needs of clinicians and patients. Among several aspects of the digital transformation of health and care, this congress expands what has been learned from previous congresses editions on applicability and usefulness of technological solutions in NMDs. In particular the focus on new solutions for remote monitoring provide valuable insights to increase disease-specific knowledge and trigger prompt decision-making. In doing that, several perspectives from different areas of expertise were shared and discussed, pointing out strengths and weaknesses on the current state of the art on topic, suggesting new research lines to advance technology in this specific clinical field.
AB - Neuromuscular diseases (NMDs), in their phenotypic heterogeneity, share quite invariably common issues that involve several clinical and socio-economical aspects, needing a deep critical analysis to develop better management strategies. From diagnosis to treatment and follow-up, the development of technological solutions can improve the detection of several critical aspects related to the diseases, addressing both the met and unmet needs of clinicians and patients. Among several aspects of the digital transformation of health and care, this congress expands what has been learned from previous congresses editions on applicability and usefulness of technological solutions in NMDs. In particular the focus on new solutions for remote monitoring provide valuable insights to increase disease-specific knowledge and trigger prompt decision-making. In doing that, several perspectives from different areas of expertise were shared and discussed, pointing out strengths and weaknesses on the current state of the art on topic, suggesting new research lines to advance technology in this specific clinical field.
U2 - 10.3233/JND-230091
DO - 10.3233/JND-230091
M3 - Conference article
C2 - 38728200
SN - 2214-3599
JO - Journal of neuromuscular diseases
JF - Journal of neuromuscular diseases
ER -