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Development of the International Severe Asthma Registry (ISAR): a modified Delphi study

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Harvard

Bulathsinhala, L, Eleangovan, N, Heaney, LG, Menzies-Gow, A, Gibson, PG, Peters, M, Hew, M, van Boven, JF, Lehtimäki, L, van Ganse, E, Belhassen, M, Harvey, E, Perez de Llano, L, Maitland-van der Zee, AH, Papadopoulos, N, FitzGerald, JM, Porsbjerg, C, Canonica, GW, Backer, V, Rhee, CK, Verhamme, K, Buhl, R, Cosio, BG, Carter, V, Price, C, Le, T, Stagno d'Alcontres, M, Gopalan, G, Tran, T & Price, D 2019, 'Development of the International Severe Asthma Registry (ISAR): a modified Delphi study' The journal of allergy and clinical immunology. In practice, pp. 578-88. https://doi.org/10.1016/j.jaip.2018.08.016

APA

Bulathsinhala, L., Eleangovan, N., Heaney, L. G., Menzies-Gow, A., Gibson, P. G., Peters, M., ... Price, D. (2019). Development of the International Severe Asthma Registry (ISAR): a modified Delphi study. The journal of allergy and clinical immunology. In practice, 578-88. [7]. https://doi.org/10.1016/j.jaip.2018.08.016

CBE

Bulathsinhala L, Eleangovan N, Heaney LG, Menzies-Gow A, Gibson PG, Peters M, Hew M, van Boven JF, Lehtimäki L, van Ganse E, Belhassen M, Harvey E, Perez de Llano L, Maitland-van der Zee AH, Papadopoulos N, FitzGerald JM, Porsbjerg C, Canonica GW, Backer V, Rhee CK, Verhamme K, Buhl R, Cosio BG, Carter V, Price C, Le T, Stagno d'Alcontres M, Gopalan G, Tran T, Price D. 2019. Development of the International Severe Asthma Registry (ISAR): a modified Delphi study. The journal of allergy and clinical immunology. In practice. 578-88. https://doi.org/10.1016/j.jaip.2018.08.016

MLA

Vancouver

Author

Bulathsinhala, Lakmini ; Eleangovan, Nevaashni ; Heaney, Liam G ; Menzies-Gow, Andrew ; Gibson, Peter G ; Peters, Matthew ; Hew, Mark ; van Boven, Job Fm ; Lehtimäki, Lauri ; van Ganse, Eric ; Belhassen, Manon ; Harvey, Erin ; Perez de Llano, Luis ; Maitland-van der Zee, Anke H ; Papadopoulos, Nikolaos ; FitzGerald, J Mark ; Porsbjerg, Celeste ; Canonica, G Walter ; Backer, Vibeke ; Rhee, Chin Kook ; Verhamme, Katia ; Buhl, Roland ; Cosio, Borja G ; Carter, Victoria ; Price, Chris ; Le, Thao ; Stagno d'Alcontres, Martina ; Gopalan, Gokul ; Tran, Trung ; Price, David. / Development of the International Severe Asthma Registry (ISAR) : a modified Delphi study. In: The journal of allergy and clinical immunology. In practice. 2019 ; pp. 578-88.

Bibtex

@article{4e9b762215f64fb48b78f584271dcec0,
title = "Development of the International Severe Asthma Registry (ISAR): a modified Delphi study",
abstract = "BACKGROUND: The lack of centralised data on severe asthma has resulted in a scarcity of information about the disease and its management. The development of a common data collection tool for the International Severe Asthma Registry (ISAR) will enable standardised data collection, subsequently enabling data interoperability.OBJECTIVES: To create a standardised list of variables for the first international registry for severe asthma via expert consensus.METHODS: A modified Delphi process was used to reach consensus on a minimum set of variables to capture in ISAR: the core variables. The Delphi panel brought together 27 international experts in the field of severe asthma research. The process consisted of three iterative rounds. In each round, all Delphi panel members were issued an electronic ISAR Delphi workbook to complete and return to the ISAR Delphi administrator. Workbooks and result summaries were anonymously distributed by the Delphi administrator to all panel members at subsequent rounds. Finalisation of the core variable list was facilitated by two face-to-face meetings.RESULTS: Of the initial 747 selected variables, the Delphi panel reached a consensus on 95. The chosen variables will allow severe asthma to be assessed against patient demographics and medical history, patient-reported outcomes, diagnostic information and clinical characteristics. Physician-reported outcomes such as non-adherence and information about treatment and management strategies will also be recorded.CONCLUSION: This is the first global attempt to generate an international severe asthma registry using a common set of core variables to ensure that data collected across all participating countries are standardised.",
author = "Lakmini Bulathsinhala and Nevaashni Eleangovan and Heaney, {Liam G} and Andrew Menzies-Gow and Gibson, {Peter G} and Matthew Peters and Mark Hew and {van Boven}, {Job Fm} and Lauri Lehtim{\"a}ki and {van Ganse}, Eric and Manon Belhassen and Erin Harvey and {Perez de Llano}, Luis and {Maitland-van der Zee}, {Anke H} and Nikolaos Papadopoulos and FitzGerald, {J Mark} and Celeste Porsbjerg and Canonica, {G Walter} and Vibeke Backer and Rhee, {Chin Kook} and Katia Verhamme and Roland Buhl and Cosio, {Borja G} and Victoria Carter and Chris Price and Thao Le and {Stagno d'Alcontres}, Martina and Gokul Gopalan and Trung Tran and David Price",
note = "Copyright {\circledC} 2018. Published by Elsevier Inc.",
year = "2019",
month = "2",
doi = "10.1016/j.jaip.2018.08.016",
language = "English",
pages = "578--88",
journal = "Journal of Allergy and Clinical Immunology: In Practice",
issn = "2213-2198",
publisher = "Elsevier",

}

RIS

TY - JOUR

T1 - Development of the International Severe Asthma Registry (ISAR)

T2 - a modified Delphi study

AU - Bulathsinhala, Lakmini

AU - Eleangovan, Nevaashni

AU - Heaney, Liam G

AU - Menzies-Gow, Andrew

AU - Gibson, Peter G

AU - Peters, Matthew

AU - Hew, Mark

AU - van Boven, Job Fm

AU - Lehtimäki, Lauri

AU - van Ganse, Eric

AU - Belhassen, Manon

AU - Harvey, Erin

AU - Perez de Llano, Luis

AU - Maitland-van der Zee, Anke H

AU - Papadopoulos, Nikolaos

AU - FitzGerald, J Mark

AU - Porsbjerg, Celeste

AU - Canonica, G Walter

AU - Backer, Vibeke

AU - Rhee, Chin Kook

AU - Verhamme, Katia

AU - Buhl, Roland

AU - Cosio, Borja G

AU - Carter, Victoria

AU - Price, Chris

AU - Le, Thao

AU - Stagno d'Alcontres, Martina

AU - Gopalan, Gokul

AU - Tran, Trung

AU - Price, David

N1 - Copyright © 2018. Published by Elsevier Inc.

PY - 2019/2

Y1 - 2019/2

N2 - BACKGROUND: The lack of centralised data on severe asthma has resulted in a scarcity of information about the disease and its management. The development of a common data collection tool for the International Severe Asthma Registry (ISAR) will enable standardised data collection, subsequently enabling data interoperability.OBJECTIVES: To create a standardised list of variables for the first international registry for severe asthma via expert consensus.METHODS: A modified Delphi process was used to reach consensus on a minimum set of variables to capture in ISAR: the core variables. The Delphi panel brought together 27 international experts in the field of severe asthma research. The process consisted of three iterative rounds. In each round, all Delphi panel members were issued an electronic ISAR Delphi workbook to complete and return to the ISAR Delphi administrator. Workbooks and result summaries were anonymously distributed by the Delphi administrator to all panel members at subsequent rounds. Finalisation of the core variable list was facilitated by two face-to-face meetings.RESULTS: Of the initial 747 selected variables, the Delphi panel reached a consensus on 95. The chosen variables will allow severe asthma to be assessed against patient demographics and medical history, patient-reported outcomes, diagnostic information and clinical characteristics. Physician-reported outcomes such as non-adherence and information about treatment and management strategies will also be recorded.CONCLUSION: This is the first global attempt to generate an international severe asthma registry using a common set of core variables to ensure that data collected across all participating countries are standardised.

AB - BACKGROUND: The lack of centralised data on severe asthma has resulted in a scarcity of information about the disease and its management. The development of a common data collection tool for the International Severe Asthma Registry (ISAR) will enable standardised data collection, subsequently enabling data interoperability.OBJECTIVES: To create a standardised list of variables for the first international registry for severe asthma via expert consensus.METHODS: A modified Delphi process was used to reach consensus on a minimum set of variables to capture in ISAR: the core variables. The Delphi panel brought together 27 international experts in the field of severe asthma research. The process consisted of three iterative rounds. In each round, all Delphi panel members were issued an electronic ISAR Delphi workbook to complete and return to the ISAR Delphi administrator. Workbooks and result summaries were anonymously distributed by the Delphi administrator to all panel members at subsequent rounds. Finalisation of the core variable list was facilitated by two face-to-face meetings.RESULTS: Of the initial 747 selected variables, the Delphi panel reached a consensus on 95. The chosen variables will allow severe asthma to be assessed against patient demographics and medical history, patient-reported outcomes, diagnostic information and clinical characteristics. Physician-reported outcomes such as non-adherence and information about treatment and management strategies will also be recorded.CONCLUSION: This is the first global attempt to generate an international severe asthma registry using a common set of core variables to ensure that data collected across all participating countries are standardised.

U2 - 10.1016/j.jaip.2018.08.016

DO - 10.1016/j.jaip.2018.08.016

M3 - Journal article

SP - 578

EP - 588

JO - Journal of Allergy and Clinical Immunology: In Practice

JF - Journal of Allergy and Clinical Immunology: In Practice

SN - 2213-2198

M1 - 7

ER -

ID: 55231036