Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis

Maria A Lopez-Olivo; José B Negrón; Richard J Zogala; Loreto Carmona; Karla Criner; Niti Goel; Laura Gonzalez-Lopez; Francesca Ingegnoli; Amye Leong; Lyn March; Beverly Shea; Vibeke Strand; Peter Tugwell; Tiffany Westrich-Robertson; Natalia V Zamora; Robin Christensen; Maria E Suarez-Almazor

doi:10.3899/jrheum.181076

Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis

Maria A Lopez-Olivo
, José B Negrón
, Richard J Zogala
, Loreto Carmona
, Karla Criner
, Niti Goel
, Laura Gonzalez-Lopez
, Francesca Ingegnoli
, Amye Leong
, Lyn March
, Beverly Shea
, Vibeke Strand
, Peter Tugwell
, Tiffany Westrich-Robertson
, Natalia V Zamora
, Robin Christensen
, Maria E Suarez-Almazor

The Parker Institute

11 Citations (Scopus)

Abstract

OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.

METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.

RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.

CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

Original language	English
Journal	Journal of Rheumatology
Volume	46
Issue number	9
Pages (from-to)	1164-1167
Number of pages	4
ISSN	0315-162X
DOIs	https://doi.org/10.3899/jrheum.181076
Publication status	Published - Sept 2019

Keywords

Observational studies
Omeract
Outcome assessment
Registries
Rheumatoid arthritis

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10.3899/jrheum.181076

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Lopez-Olivo, M. A., Negrón, J. B., Zogala, R. J., Carmona, L., Criner, K., Goel, N., Gonzalez-Lopez, L., Ingegnoli, F., Leong, A., March, L., Shea, B., Strand, V., Tugwell, P., Westrich-Robertson, T., Zamora, N. V., Christensen, R., & Suarez-Almazor, M. E. (2019). Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis. Journal of Rheumatology, 46(9), 1164-1167. https://doi.org/10.3899/jrheum.181076

Lopez-Olivo, MA, Negrón, JB, Zogala, RJ, Carmona, L, Criner, K, Goel, N, Gonzalez-Lopez, L, Ingegnoli, F, Leong, A, March, L, Shea, B, Strand, V, Tugwell, P, Westrich-Robertson, T, Zamora, NV, Christensen, R & Suarez-Almazor, ME 2019, 'Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis', Journal of Rheumatology, vol. 46, no. 9, pp. 1164-1167. https://doi.org/10.3899/jrheum.181076

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abstract = "OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis.METHODS: Preliminary data and proposed next steps were outlined and discussed by participants.RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death.CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.",

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AU - Negrón, José B

AU - Zogala, Richard J

AU - Carmona, Loreto

AU - Criner, Karla

AU - Goel, Niti

AU - Gonzalez-Lopez, Laura

AU - Ingegnoli, Francesca

AU - Leong, Amye

AU - March, Lyn

AU - Shea, Beverly

AU - Strand, Vibeke

AU - Tugwell, Peter

AU - Westrich-Robertson, Tiffany

AU - Zamora, Natalia V

AU - Christensen, Robin

AU - Suarez-Almazor, Maria E

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KW - Registries

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Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis

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