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Chronic disruptions: How parents with a young child with type 1 diabetes navigate self-care and negotiate uncertainty in daily life

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Living as a parent and self-care surrogate of a young child with type 1 diabetes (T1D) is demanding and a disruption to ‘normal’ routinized daily living. Research has mainly focused on the time of diagnosis as a one-time biographical disruption. In this article, we will show how, in the case of families with young children with T1D, the biographical disruption can be viewed as a continuous state of vigilance that affects family functioning and ‘normal’ living. We will show this by focusing on the temporal events and moments that keep the families in a state of what we will term ‘chronic disruption.’ The events are the transitions from hospitalization to home, home to nursery, nursery to daycare, and daycare to school and preparations for social activities concerning the child. The moments are more fluid, ranging from daily interruptions when daycare workers and teachers call parents with doubts about self-care to negotiations with institutions and municipalities and a constant state of worry.
Original languageDanish
Publication dateDec 2019
Publication statusPublished - Dec 2019
EventDanish Diabetes Academy. Children and adolescents with type 1 diabetes: Meeting the bio-psycho-scoail challenges - Charlottehaven. 2100, København, Denmark
Duration: 9 Dec 201910 Dec 2019
https://www.danishdiabetesacademy.dk/events/children-adolescents-type-1-diabetes

Conference

ConferenceDanish Diabetes Academy. Children and adolescents with type 1 diabetes
LocationCharlottehaven. 2100
CountryDenmark
CityKøbenhavn
Period09/12/201910/12/2019
Internet address

Event

Danish Diabetes Academy. Children and adolescents with type 1 diabetes: Meeting the bio-psycho-scoail challenges

09/12/201910/12/2019

København, Denmark

Event: Conference

ID: 58494672