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The Capital Region of Denmark - a part of Copenhagen University Hospital
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Characteristics of patients reporting symptoms by open-ended questions in specialist palliative care

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INTRODUCTION: Comprehensive symptom assessment may be achieved by combining patient-reported outcome instruments with open-ended questions. The open-ended "Write In three Symptoms/Problems" (WISP) instrument allows patients to report symptoms and problems (S/Ps) not covered by the EORTC QLQ-C15-PAL. This study investigated whether sociodemographic or clinical variables were associated with the reporting of additional S/Ps on WISP.

METHODS: Data from the Danish Palliative Care Database included all patients admitted to specialist palliative care in Denmark in 2016 who completed the EORTC QLQ-C15-PAL. The associations between patient characteristics and the reporting of a) any additional symptom/problem and b) each of the ten most prevalent additional S/Ps (oedema, dizziness, cough, sweats, diarrhoea, dry mouth, incontinence, sore mouth, vomiting and dysphagia) were investigated using multiple logistic regression.

RESULTS: In total, 1,295 patients reported additional S/Ps on WISP. Reporting any additional symptom/problem was associated with having younger children and living with someone. The reporting of the most prevalent additional S/Ps was associated with cancer diagnosis, having younger children, living with someone and being an outpatient.

CONCLUSIONS: This study gives new insights into the characteristics of patients reporting S/Ps that are not assessed by standard measures. The results may assist clinicians in improving palliative care.

FUNDING: The salary of the first author was financed by Becas Chile-CONICYT.

TRIAL REGISTRATION: not relevant.

Original languageEnglish
JournalDanish Medical Journal
Volume68
Issue number8
ISSN1603-9629
Publication statusPublished - 8 Jul 2021

    Research areas

  • Child, Humans, Neoplasms/therapy, Palliative Care, Patient Reported Outcome Measures, Quality of Life, Surveys and Questionnaires

ID: 67449141