Research
Print page Print page
Switch language
The Capital Region of Denmark - a part of Copenhagen University Hospital
Published

Care of family caregivers of persons with dementia (CaFCa) through a tailor-made mobile app: study protocol of a complex intervention study

Research output: Contribution to journalJournal articleResearchpeer-review

  1. Experiences of Patients Undergoing Bowel Preparation and Colonoscopy: A Qualitative Longitudinal Study

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. In Conversation with a Frontline Worker in a Care Home in Sweden during the COVID-19 Pandemic

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Living with heart failure: perspectives of ethnic minority families

    Research output: Contribution to journalJournal articleResearchpeer-review

  4. The COVID-19 Pandemic: A Family Affair

    Research output: Contribution to journalEditorialpeer-review

  • Zarina Nahar Kabir
  • Angela Yee Man Leung
  • Åke Grundberg
  • Anne-Marie Boström
  • Kristina Lämås
  • Ana Paula Kallström
  • Cecilia Moberg
  • Berit Seiger Cronfalk
  • Sebastian Meijer
  • Hanne Konradsen
View graph of relations

Background: Globally, family members account for the main source of caregiving of persons with dementia living at home. Providing care to family members with dementia often has negative health consequences for caregivers such as stress, depression and low quality of life. Yet, formal support for family caregivers (FCs) is limited. Telehealth technology has the potential to provide health care and social support to FCs. This study aims to assess the effectiveness of providing support by healthcare professionals (HPs) through a mobile app in reducing stress, depressive symptoms and loneliness, and improving mental health and quality of life of FCs of persons with dementia. Methods: Using a pragmatic intervention design, this study will use pre- A nd post-intervention assessment to evaluate the effectiveness of the proposed intervention in a sample of 78 FCs of persons with dementia (PWD). The intervention will be implemented by approximately 5 HPs specialized in dementia care based in the municipalities in Sweden. The main thrust of the intervention is to provide professional support, with help of an interactive mobile app, to family members in their caregiving role for PWDs. Qualitative interviews with HPs and FCs form the groundwork of the development of the mobile app. By using the app on smart phone or tablet, the FC, in groups of 8-10, will communicate with peers and a HP exchanging ideas on how to deal with PWD's behavioral and cognitive changes and get support. They will also be able to discuss stressful events and access mindfulness exercises focused on themselves. Quantitative data will be collected before and at three time points after the 8-week intervention to assess changes in the health outcomes of the FCs. In-depth interviews will be conducted after the intervention to capture the experiences of FCs and HPs regarding the ease of use and acceptability of the app. Discussion: This tailor-made mobile app has the high potential to be a practical platform for supporting FCs to alleviate stress and improve mental health irrespective of distance to the nearest health care or social service center. Trial registration: ISRCTN, ISRCTN46137262. Registered 10 October 2019.

Original languageEnglish
Article number305
JournalBMC Geriatrics
Volume20
Issue number1
Pages (from-to)305
DOIs
Publication statusPublished - 26 Aug 2020

    Research areas

  • Caregiver stress, Caregiving, Depressive symptoms, Family caregiver, Loneliness, Person with dementia, Telehealth, mHealth, Caregivers, Humans, Dementia/therapy, Sweden, Mobile Applications, Quality of Life

ID: 60839191