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Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS

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Harvard

Pugliatti, M, Eskic, D, Mikolcić, T, Pitschnau-Michel, D, Myhr, K-M, Sastre-Garriga, J, Otero, S, Wieczynska, L, Torje, C, Holloway, E, Rienhoff, O, Friede, T, Buckow, K, Ellenberger, D, Hillert, J, Glaser, A-MS, Flachenecker, P, Fuge, J, Schyns-Liharska, T, Kasilingam, E, Moretti, A, Thalheim, C, EUReMS Consortium & Sørensen, PS 2012, 'Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS', Acta Neurologica Scandinavica. Supplementum, vol. 126, no. 195, pp. 24-30. https://doi.org/10.1111/ane.12024

APA

Pugliatti, M., Eskic, D., Mikolcić, T., Pitschnau-Michel, D., Myhr, K-M., Sastre-Garriga, J., Otero, S., Wieczynska, L., Torje, C., Holloway, E., Rienhoff, O., Friede, T., Buckow, K., Ellenberger, D., Hillert, J., Glaser, A-M. S., Flachenecker, P., Fuge, J., Schyns-Liharska, T., ... Sørensen, P. S. (2012). Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS. Acta Neurologica Scandinavica. Supplementum, 126(195), 24-30. https://doi.org/10.1111/ane.12024

CBE

Pugliatti M, Eskic D, Mikolcić T, Pitschnau-Michel D, Myhr K-M, Sastre-Garriga J, Otero S, Wieczynska L, Torje C, Holloway E, Rienhoff O, Friede T, Buckow K, Ellenberger D, Hillert J, Glaser A-MS, Flachenecker P, Fuge J, Schyns-Liharska T, Kasilingam E, Moretti A, Thalheim C, EUReMS Consortium, Sørensen PS. 2012. Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS. Acta Neurologica Scandinavica. Supplementum. 126(195):24-30. https://doi.org/10.1111/ane.12024

MLA

Vancouver

Author

Pugliatti, M ; Eskic, D ; Mikolcić, T ; Pitschnau-Michel, D ; Myhr, K-M ; Sastre-Garriga, J ; Otero, S ; Wieczynska, L ; Torje, C ; Holloway, E ; Rienhoff, O ; Friede, T ; Buckow, K ; Ellenberger, D ; Hillert, J ; Glaser, Anne-Marie Søderberg ; Flachenecker, P ; Fuge, J ; Schyns-Liharska, T ; Kasilingam, E ; Moretti, A ; Thalheim, C ; EUReMS Consortium ; Sørensen, Per Soelberg. / Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe : a European Register for MS. In: Acta Neurologica Scandinavica. Supplementum. 2012 ; Vol. 126, No. 195. pp. 24-30.

Bibtex

@article{613c1952b1c14ec9bdf6c28d87d4d5ca,
title = "Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS",
abstract = "Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.",
author = "M Pugliatti and D Eskic and T Mikolci{\'c} and D Pitschnau-Michel and K-M Myhr and J Sastre-Garriga and S Otero and L Wieczynska and C Torje and E Holloway and O Rienhoff and T Friede and K Buckow and D Ellenberger and J Hillert and Glaser, {Anne-Marie S{\o}derberg} and P Flachenecker and J Fuge and T Schyns-Liharska and E Kasilingam and A Moretti and C Thalheim and {EUReMS Consortium} and S{\o}rensen, {Per Soelberg}",
note = "{\textcopyright} 2012 John Wiley & Sons A/S.",
year = "2012",
doi = "10.1111/ane.12024",
language = "English",
volume = "126",
pages = "24--30",
journal = "Acta psychiatrica et neurologica. Supplementum",
issn = "0065-1427",
publisher = "Wiley-Blackwell Munksgaard",
number = "195",

}

RIS

TY - JOUR

T1 - Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe

T2 - a European Register for MS

AU - Pugliatti, M

AU - Eskic, D

AU - Mikolcić, T

AU - Pitschnau-Michel, D

AU - Myhr, K-M

AU - Sastre-Garriga, J

AU - Otero, S

AU - Wieczynska, L

AU - Torje, C

AU - Holloway, E

AU - Rienhoff, O

AU - Friede, T

AU - Buckow, K

AU - Ellenberger, D

AU - Hillert, J

AU - Glaser, Anne-Marie Søderberg

AU - Flachenecker, P

AU - Fuge, J

AU - Schyns-Liharska, T

AU - Kasilingam, E

AU - Moretti, A

AU - Thalheim, C

AU - EUReMS Consortium

AU - Sørensen, Per Soelberg

N1 - © 2012 John Wiley & Sons A/S.

PY - 2012

Y1 - 2012

N2 - Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.

AB - Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS.

U2 - 10.1111/ane.12024

DO - 10.1111/ane.12024

M3 - Journal article

C2 - 23278653

VL - 126

SP - 24

EP - 30

JO - Acta psychiatrica et neurologica. Supplementum

JF - Acta psychiatrica et neurologica. Supplementum

SN - 0065-1427

IS - 195

ER -

ID: 38386158