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The Capital Region of Denmark - a part of Copenhagen University Hospital
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An exploratory study of how young people experience and perceive living with type 1 diabetes during late adolescence and emerging adulthood

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DOI

  1. Barriers to intra-familial prevention of type 2 diabetes: A qualitative study on horizons of significance and social imaginaries

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Health Literacy and self-care among visually impaired people with type 1 diabetes in Denmark

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. The use of dialogue tools to promote dialogue-based and person-centred patient education for people with type 2 diabetes

    Research output: Contribution to journalJournal articleResearchpeer-review

  1. Demanding devices - living with diabetes devices as a pre-teen

    Research output: Contribution to journalJournal articleResearchpeer-review

  2. Playing With Peers: Exploring Peer Support Mechanisms of a Type 2 Diabetes-Specific Board Game

    Research output: Contribution to journalJournal articleResearchpeer-review

  3. Testing an analogue game to promote peer support and person-centredness in education for people with diabetes: A realist evaluation

    Research output: Contribution to journalJournal articleResearchpeer-review

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Objective: Suboptimal glycemic control and psychosocial challenges are significant concerns for adolescents and emerging adults (collectively young people) with type 1 diabetes. Knowledge about young peoples’ attitudes towards living with type 1 diabetes is inadequate, but the issue is important in the development of strategies to improve glycemic control and psychosocial well-being. This study explored young peoples’ perceptions of living with type 1 diabetes. Methods: An exploratory, qualitative design was employed. Data were collected through five participatory workshops with 19 young people (age 15–25). Data were thematically analyzed. Results: The overall depiction of living with type 1 diabetes was paradoxical; it affected everything and nothing. Living with type 1 diabetes was a balancing act between accommodating a “normal” way of living and self-management tasks of the treatment regimen. Participants’ perceptions reflected shifting accounts that could be divided into five themes: (1) special rules during youth, (2) striving for autonomy, (3) an uncertain future, (4) social support, and (5) stigma and disclosure. Discussion: It is important to probe for the multiple and interrelated social contexts that underlie young peoples’ motives for adhering to and deviating from treatment regimens. Future studies should focus on relational aspects, including stigma mechanisms, the role of friends, and facilitation of balanced parental involvement.

Original languageEnglish
JournalChronic Illness
Volume17
Issue number4
Pages (from-to)475-492
ISSN1742-3953
DOIs
Publication statusPublished - Dec 2021

    Research areas

  • adolescence, emerging adulthood, lived experience, qualitative methods, Type 1 diabetes

ID: 58408692