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Updated EORTC QLQ-C30 general population norm data for Germany

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Nolte, Sandra ; Waldmann, Annika ; Liegl, Gregor ; Petersen, Morten Aa ; Groenvold, Mogens ; Rose, Matthias. / Updated EORTC QLQ-C30 general population norm data for Germany. I: European Journal of Cancer. 2020 ; Bind 137. s. 161-170.

Bibtex

@article{d57a31d27d64457e88421524857bb979,
title = "Updated EORTC QLQ-C30 general population norm data for Germany",
abstract = "OBJECTIVE: The European Organisation for Research and Treatment of Cancer (EORTC) core questionnaire, QLQ-C30, is a frequently used patient-reported outcome (PRO) instrument to assess health-related quality of life of patients with cancer. To enhance the understanding and interpretation of PRO data, it is important to obtain norm data from the general population. This article presents updated general population norm data for the EORTC QLQ-C30 for Germany.METHODS: Data were obtained as part of a larger study collecting EORTC QLQ-C30 norm data across 15 countries via an online survey. After linear transformation of EORTC QLQ-C30 raw scores, data were weighted based on the United Nations' population distribution statistics. Data are presented by age and sex/age.RESULTS: A total of 1006 Germans responded to the survey. Across EORTC QLQ-C30 domains, different response patterns were observed, with men generally scoring better, that is, higher in most function scales and lower in most symptom scales/items than women. For age, mixed patterns were observed. While older respondents scored worse/lower in physical and role functioning, emotional functioning scores appeared to increase with increasing age. For the symptom scales/items, some symptoms were relatively stable across age groups, while others either increased or decreased with increasing age.CONCLUSIONS: This study presents updated EORTC QLQ-C30 general population norm data for Germany that can readily be used for comparative purposes with data obtained from patients with cancer.",
keywords = "EORTC QLQ-C30, General population, Germany, Norm data, Normative data, Patient-reported outcomes, Quality of life, Self-report, Survey",
author = "Sandra Nolte and Annika Waldmann and Gregor Liegl and Petersen, {Morten Aa} and Mogens Groenvold and Matthias Rose",
note = "Copyright {\textcopyright} 2020 The Author(s). Published by Elsevier Ltd.. All rights reserved.",
year = "2020",
month = sep,
doi = "10.1016/j.ejca.2020.06.002",
language = "English",
volume = "137",
pages = "161--170",
journal = "European Journal of Cancer, Supplement",
issn = "0959-8049",
publisher = "Pergamon",

}

RIS

TY - JOUR

T1 - Updated EORTC QLQ-C30 general population norm data for Germany

AU - Nolte, Sandra

AU - Waldmann, Annika

AU - Liegl, Gregor

AU - Petersen, Morten Aa

AU - Groenvold, Mogens

AU - Rose, Matthias

N1 - Copyright © 2020 The Author(s). Published by Elsevier Ltd.. All rights reserved.

PY - 2020/9

Y1 - 2020/9

N2 - OBJECTIVE: The European Organisation for Research and Treatment of Cancer (EORTC) core questionnaire, QLQ-C30, is a frequently used patient-reported outcome (PRO) instrument to assess health-related quality of life of patients with cancer. To enhance the understanding and interpretation of PRO data, it is important to obtain norm data from the general population. This article presents updated general population norm data for the EORTC QLQ-C30 for Germany.METHODS: Data were obtained as part of a larger study collecting EORTC QLQ-C30 norm data across 15 countries via an online survey. After linear transformation of EORTC QLQ-C30 raw scores, data were weighted based on the United Nations' population distribution statistics. Data are presented by age and sex/age.RESULTS: A total of 1006 Germans responded to the survey. Across EORTC QLQ-C30 domains, different response patterns were observed, with men generally scoring better, that is, higher in most function scales and lower in most symptom scales/items than women. For age, mixed patterns were observed. While older respondents scored worse/lower in physical and role functioning, emotional functioning scores appeared to increase with increasing age. For the symptom scales/items, some symptoms were relatively stable across age groups, while others either increased or decreased with increasing age.CONCLUSIONS: This study presents updated EORTC QLQ-C30 general population norm data for Germany that can readily be used for comparative purposes with data obtained from patients with cancer.

AB - OBJECTIVE: The European Organisation for Research and Treatment of Cancer (EORTC) core questionnaire, QLQ-C30, is a frequently used patient-reported outcome (PRO) instrument to assess health-related quality of life of patients with cancer. To enhance the understanding and interpretation of PRO data, it is important to obtain norm data from the general population. This article presents updated general population norm data for the EORTC QLQ-C30 for Germany.METHODS: Data were obtained as part of a larger study collecting EORTC QLQ-C30 norm data across 15 countries via an online survey. After linear transformation of EORTC QLQ-C30 raw scores, data were weighted based on the United Nations' population distribution statistics. Data are presented by age and sex/age.RESULTS: A total of 1006 Germans responded to the survey. Across EORTC QLQ-C30 domains, different response patterns were observed, with men generally scoring better, that is, higher in most function scales and lower in most symptom scales/items than women. For age, mixed patterns were observed. While older respondents scored worse/lower in physical and role functioning, emotional functioning scores appeared to increase with increasing age. For the symptom scales/items, some symptoms were relatively stable across age groups, while others either increased or decreased with increasing age.CONCLUSIONS: This study presents updated EORTC QLQ-C30 general population norm data for Germany that can readily be used for comparative purposes with data obtained from patients with cancer.

KW - EORTC QLQ-C30

KW - General population

KW - Germany

KW - Norm data

KW - Normative data

KW - Patient-reported outcomes

KW - Quality of life

KW - Self-report

KW - Survey

UR - http://www.scopus.com/inward/record.url?scp=85089146832&partnerID=8YFLogxK

U2 - 10.1016/j.ejca.2020.06.002

DO - 10.1016/j.ejca.2020.06.002

M3 - Journal article

C2 - 32777715

VL - 137

SP - 161

EP - 170

JO - European Journal of Cancer, Supplement

JF - European Journal of Cancer, Supplement

SN - 0959-8049

ER -

ID: 61155514