Understanding how a community-based intervention for people with spinal cord injury in Bangladesh was delivered as part of a randomised controlled trial: a process evaluation

Hueiming Liu, Mohammad Sohrab Hossain, Md Shofiqul Islam, Md Akhlasur Rahman, Punam D Costa, Robert D Herbert, Stephen Jan, Ian D Cameron, Stephen Muldoon, Harvinder S Chhabra, Richard I Lindley, Fin Biering-Sorensen, Stanley Ducharme, Valerie Taylor, Lisa A Harvey

    Abstract

    DESIGN: Mixed methods study SETTING: Community, Bangladesh OBJECTIVES: To understand how a community-based intervention for people with spinal cord injury (SCI) in Bangladesh was delivered as part of a randomised controlled trial and to gauge the perceptions of participants and healthcare professionals to the intervention.

    METHODS: A community-based intervention was administered to 204 participants as part of a large randomised controlled trial (called the CIVIC trial). Case-managers followed-up participants with regular telephone calls and home visits over the first 2 years after discharge. The following data were collected alongside the trial: (i) chart audit of telephone calls and home visits (ii) recordings of 20 telephone calls (iii) interviews with 14 Intervention participants and four healthcare professionals including three case-managers.

    RESULTS: Participants received the target number of telephone calls and home visits. Pressure injuries were identified as a problem during at least one telephone call by 43% of participants. Participants and case-managers valued regular telephone calls and home visits, and believed that calls and visits prevented complications and alleviated social isolation. Participants trusted case-managers and were confident in the care and advice provided. Case-managers expressed concerns that people with SCI in Bangladesh face many problems impacting on well-being and motivation stemming from poverty, limited employment opportunities, societal attitudes and inaccessible environments.

    CONCLUSION: A community-based intervention involving regular telephone calls and home visits was administered as intended and was well received by the recipients of the care. Nonetheless, people with SCI in Bangladesh face economic and social problems which cannot be fully addressed by this type of intervention alone.

    OriginalsprogEngelsk
    TidsskriftSpinal Cord
    Vol/bind58
    Udgave nummer11
    Sider (fra-til)1166-1175
    Antal sider10
    ISSN1362-4393
    DOI
    StatusUdgivet - nov. 2020

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