Forskning
Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital
Udgivet

The marked body - a qualitative study on survivors embodied experiences of a COVID-19 illness trajectory

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Am I going to die now? Experiences of hospitalisation and subsequent life after being diagnosed with aortic dissection

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Health practices in Europe towards families of older patients with cancer: a scoping review

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  3. A challenging journey: The experience of elderly patients and their close family members after major emergency abdominal surgery

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. A place of understanding: Patients' lived experiences of participating in a sexual rehabilitation programme after heart disease

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  5. Patient and spouses experiences with transition from intensive care unit to hospital ward - qualitative study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

BACKGROUND: Research on COVID-19 has reported data on epidemiology and pathophysiology but less about what it means to be a person living through this illness. Research involving the patients' perspectives may help to improve healthcare professionals' understanding of ways to support patients.

AIMS: To gain in-depth understanding of the meaning of a COVID-19 illness trajectory from the patients' perspective.

METHODS: Fifteen participants who had undergone an illness trajectory due to confirmed COVID-19 infection participated in individual qualitative interviews. Data collection, analysis and interpretation were inspired by Ricoeur's philosophy and Merleau-Ponty's phenomenology of perception and embodiment has been applied as a theoretical frame.

FINDINGS: Being infected with coronavirus is expressed as an experience in which the participants oscillate between relief, security, imprisonment and raw fear. A predominant focus on the physical dimensions of the diseased body was found in the encounters between patient and healthcare system, and distance may furthermore be a consequence of use of protective equipment. Stigma and fear of infection were also expressed. After COVID-19, an overwhelming feeling of a door opening to freedom is perceived. However, the body is marked, and bears witness to decay from this insidious and frightening virus. The responsibility for assessing their bodily symptoms is placed with the individual patients themselves, who feel lonely and fearful and this keeps them indoors.

CONCLUSIONS: During a COVID-19 illness, trajectory concerns about the unknown course of this disease are highlighted. Isolation is confrontational; however, a companionship between patients might emerge. The study shed light on an unavoidable gap between the patients and healthcare professionals due to the use protective equipment. After COVID-19, the body is labelled as something others fear and become a symbol of awe and alienation for others.

OriginalsprogEngelsk
TidsskriftScandinavian Journal of Caring Sciences
ISSN0283-9318
DOI
StatusUdgivet - 18 mar. 2021

ID: 65561669