The Global State of the Genetic Counseling Profession

MaryAnn Abacan; Lamia Alsubaie; Kristine Barlow-Stewart; Beppy Caanen; Christophe Cordier; Eliza Courtney; Emeline Davoine; Janice Edwards; Niby J Elackatt; Kate Gardiner; Yue Guan; Lian-Hua Huang; Charlotta Ingvoldstad Malmgren; Sahil Kejriwal; Hyon J Kim; Deborah Lambert; Paulina Araceli Lantigua-Cruz; Juliana M H Lee; Marianne Lodahl; Åshild Lunde; Shelley Macaulay; Ivan Macciocca; Sonia Margarit; Anna Middleton; Ramona Moldovan; Joanne Ngeow; Alexandra J Obregon-Tito; Kelly E Ormond; Milena Paneque; Karen Powell; Kunal Sanghavi; Diana Scotcher; Jenna Scott; Clara Serra Juhé; Shiri Shkedi-Rafid; Tina-Marié Wessels; Sook-Yee Yoon; Catherine Wicklund

doi:10.1038/s41431-018-0252-x

The Global State of the Genetic Counseling Profession

MaryAnn Abacan, Lamia Alsubaie, Kristine Barlow-Stewart, Beppy Caanen, Christophe Cordier, Eliza Courtney, Emeline Davoine, Janice Edwards, Niby J Elackatt, Kate Gardiner, Yue Guan, Lian-Hua Huang, Charlotta Ingvoldstad Malmgren, Sahil Kejriwal, Hyon J Kim, Deborah Lambert, Paulina Araceli Lantigua-Cruz, Juliana M H Lee, Marianne Lodahl, Åshild LundeShelley Macaulay, Ivan Macciocca, Sonia Margarit, Anna Middleton, Ramona Moldovan, Joanne Ngeow, Alexandra J Obregon-Tito, Kelly E Ormond, Milena Paneque, Karen Powell, Kunal Sanghavi, Diana Scotcher, Jenna Scott, Clara Serra Juhé, Shiri Shkedi-Rafid, Tina-Marié Wessels, Sook-Yee Yoon, Catherine Wicklund

Afdeling for Genetik

238 Citationer (Scopus)

Abstract

The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Originalsprog	Engelsk
Tidsskrift	European journal of human genetics : EJHG
Vol/bind	27
Udgave nummer	2
Sider (fra-til)	183-197
Antal sider	15
ISSN	1018-4813
DOI	https://doi.org/10.1038/s41431-018-0252-x
Status	Udgivet - feb. 2019

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Abacan, M., Alsubaie, L., Barlow-Stewart, K., Caanen, B., Cordier, C., Courtney, E., Davoine, E., Edwards, J., Elackatt, N. J., Gardiner, K., Guan, Y., Huang, L.-H., Malmgren, C. I., Kejriwal, S., Kim, H. J., Lambert, D., Lantigua-Cruz, P. A., Lee, J. M. H., Lodahl, M., ... Wicklund, C. (2019). The Global State of the Genetic Counseling Profession. European journal of human genetics : EJHG, 27(2), 183-197. https://doi.org/10.1038/s41431-018-0252-x

Abacan, M, Alsubaie, L, Barlow-Stewart, K, Caanen, B, Cordier, C, Courtney, E, Davoine, E, Edwards, J, Elackatt, NJ, Gardiner, K, Guan, Y, Huang, L-H, Malmgren, CI, Kejriwal, S, Kim, HJ, Lambert, D, Lantigua-Cruz, PA, Lee, JMH, Lodahl, M, Lunde, Å, Macaulay, S, Macciocca, I, Margarit, S, Middleton, A, Moldovan, R, Ngeow, J, Obregon-Tito, AJ, Ormond, KE, Paneque, M, Powell, K, Sanghavi, K, Scotcher, D, Scott, J, Juhé, CS, Shkedi-Rafid, S, Wessels, T-M, Yoon, S-Y & Wicklund, C 2019, 'The Global State of the Genetic Counseling Profession', European journal of human genetics : EJHG, bind 27, nr. 2, s. 183-197. https://doi.org/10.1038/s41431-018-0252-x

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The Global State of the Genetic Counseling Profession

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