TY - JOUR
T1 - The development of the EORTC QLQ-C15-PAL
T2 - a shortened questionnaire for cancer patients in palliative care
AU - Groenvold, Mogens
AU - Petersen, Morten Aa
AU - Aaronson, Neil K
AU - Arraras, Juan I
AU - Blazeby, Jane M
AU - Bottomley, Andrew
AU - Fayers, Peter M
AU - de Graeff, Alexander
AU - Hammerlid, Eva
AU - Kaasa, Stein
AU - Sprangers, Mirjam A G
AU - Bjorner, Jakob B
AU - EORTC Quality of Life Group
PY - 2006/1
Y1 - 2006/1
N2 - This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires.
AB - This study aimed at developing a shortened version of the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research. The study included interviews with 41 patients and 66 health care professionals in palliative care to determine the appropriateness, relevance and importance of the various domains of the QLQ-C30. Item response theory methods were used to shorten scales. Patients and health care professionals rated pain, physical function, emotional function, fatigue, global health status/quality of life, nausea/vomiting, appetite, dyspnoea, constipation, and sleep as most important. Therefore, these scales/items were retained in the questionnaire. Four scales were shortened without reducing measurement precision. Important dimensions not covered by the questionnaire were identified. The resulting 15-item EORTC QLQ-C15-PAL is a 'core questionnaire' for palliative care. Depending on the research questions, it may be supplemented by additional items, modules or questionnaires.
KW - Activities of Daily Living
KW - Adult
KW - Aged
KW - Aged, 80 and over
KW - Cognition Disorders/psychology
KW - Constipation/psychology
KW - Cost of Illness
KW - Dyspnea/psychology
KW - Emotions
KW - Fatigue/psychology
KW - Feeding and Eating Disorders/psychology
KW - Health Status
KW - Humans
KW - Interpersonal Relations
KW - Middle Aged
KW - Nausea/psychology
KW - Neoplasms/psychology
KW - Pain/psychology
KW - Palliative Care/standards
KW - Quality of Life
KW - Surveys and Questionnaires/standards
KW - Vomiting/psychology
U2 - 10.1016/j.ejca.2005.06.022
DO - 10.1016/j.ejca.2005.06.022
M3 - Journal article
C2 - 16162404
SN - 0959-8049
VL - 42
SP - 55
EP - 64
JO - European journal of cancer (Oxford, England : 1990)
JF - European journal of cancer (Oxford, England : 1990)
IS - 1
ER -