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Region Hovedstaden - en del af Københavns Universitetshospital
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The Danish severe asthma register: an electronic platform for severe asthma management and research

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Eosinophilic airway diseases: basic science, clinical manifestations and future challenges

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  2. Hospital admission for COVID-19 pneumonitis–long-term impairment in quality of life and lung function

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  3. COVID-19 and acute respiratory failure treated with CPAP

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  4. Danish translation and linguistic validation of the multidimensional dyspnea profile

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  5. Fractional exhaled nitric oxide as a determinant for the clinical course of asthma: a systematic review

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  1. Global Variability in Administrative Approval Prescription Criteria for Biologic Therapy in Severe Asthma

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  2. Long-term outcomes of dexamethasone 12 mg versus 6 mg in patients with COVID-19 and severe hypoxaemia

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Impact of former smoking exposure on airway eosinophilic activation and autoimmunity in patients with severe asthma

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Automated cell differential count in sputum is feasible and comparable to manual cell count in identifying eosinophilia

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

The evaluation and management of severe asthma patients require collection of comprehensive information, which is often a challenge in a busy outpatient clinic. The Danish Severe Asthma Register (DSAR) was designed as an electronic patient record form that captures operational clinical data and provides a clinical overview of the severe asthma patient. DSAR is a nationwide register; all patients in Denmark who are treated with biologics for severe asthma are included, and data are as a minimum entered at start of biological treatment, after four and 12 months of treatment, and hereafter annually. Currently, there are data from 621 treatment courses with biologics included in DSAR, with 71% of patients treated with anti-IL-5 drugs and 29% with an anti-IgE drug. Patients enter Patient Reported Outcome Measures electronically on tablets when they arrive in the outpatient clinic and their answers are immediately available to the clinician during the consultation. Nurses and doctors enter clinical data into DSAR during the consultation. DSAR offers immediate access to well-presented longitudinal overview and automatically creates a journal output that can be copy-pasted into the hospital's existing health record form. DSAR is also currently expanding with an app, to be used for monitoring of home-treatment. In addition to serving as an electronic patient record form, DSAR will also provide opportunities to monitor the real-life efficacy of biological treatment for severe asthma in Denmark, and it will be a valuable research platform that will aid in answering important research questions on severe asthma in the future.

OriginalsprogEngelsk
Artikelnummer1842117
TidsskriftEuropean Clinical Respiratory Journal
Vol/bind8
Udgave nummer1
Sider (fra-til)1-13
Antal sider13
ISSN2001-8525
DOI
StatusUdgivet - 2021

Bibliografisk note

© 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

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