Forskning
Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital
Udgivet

Spousal bereavement after fibrotic interstitial lung disease: A qualitative study

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Prognosis of COPD depends on severity of exacerbation history: A population-based analysis

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Differentiation of adult severe asthma from difficult-to-treat asthma - Outcomes of a systematic assessment protocol

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Self-reported intake of fruit and vegetables and risk of chronic obstructive pulmonary disease: A nation-wide twin study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Validation of ATS clinical practice guideline cut-points for FeNO in asthma

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  5. Airway Interleukin-33 and type 2 cytokines in adult patients with acute asthma

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Extent and application of patient diaries in Austria: process of continuing adaptation

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Elements of intensive care bereavement follow-up services: A European survey

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Impact of caller's degree-of-worry on triage response in out-of-hours telephone consultations: a randomized controlled trial

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Labour market attachment after mild traumatic brain injury: nationwide cohort study with 5-year register follow-up in Denmark

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

Introduction: Fibrotic interstitial lung disease (f-ILD) comprises a group of diseases with lung scarring and reduced life expectancy. The short time from diagnosis to death affects the patients’ bereaved spouses, who risk developing prolonged grief. In Denmark palliative care is most often offered to cancer patients. Aim: We aimed to investigate the experience of spouses of f-ILD patients during the final stages of illness and up to the first year after the patient's death to investigate if palliative care could ease the transition and prevent PGD. Methods: Our study had a qualitative design triangulating in-depth interviews, field notes, participant diaries and the prolonged grief questionnaire PG-13. We included 20 spouses and applied thematic analysis. Initial coding was performed deductively according to the chronological stages of before, during and after the death of the patient. We subsequently coded inductively within the stages. Results: During the final days the spouses experienced emotional ambivalence shifting between hope, acceptance and despair. Factors affecting the spouses during the final hours were the timing, location, and process of death. After the patient's death the spouses experienced feelings of grief and optimism as they moved toward a new life on their own. Conclusions: Some of the factors affecting the spouses and potentially causing prolonged grief might be alleviated by offering palliative/supportive care and advance care planning to f-ILD patients and their family.

OriginalsprogEngelsk
TidsskriftRespiratory medicine
Vol/bind146
Sider (fra-til)129-136
Antal sider8
ISSN0954-6111
DOI
StatusUdgivet - 1 jan. 2019

ID: 56153359