Sociodemographic, personal, and disease-related determinants of referral to patient-reported outcome-based follow-up of remote outpatients: a prospective cohort study

Liv Marit Valen Schougaard, Annette de Thurah, Jakob Christensen, Kirsten Lomborg, Helle Terkildsen Maindal, Caroline Trillingsgaard Mejdahl, Jesper Medom Vestergaard, Trine Nøhr Winding, Karin Biering, Niels Henrik Hjollund

9 Citationer (Scopus)

Abstract

PURPOSE: We examined the association between sociodemographic, personal, and disease-related determinants and referral to a new model of health care that uses patient-reported outcomes (PRO) measures for remote outpatient follow-up (PRO-based follow-up).

METHODS: We conducted a prospective cohort study among outpatients with epilepsy at the Department of Neurology at Aarhus University Hospital, Denmark. Included were all persons aged ≥ 15 years visiting the department for the first time during the period from May 2016 to May 2018. Patients received a questionnaire containing questions about health literacy, self-efficacy, patient activation, well-being, and general health. We also collected data regarding sociodemographic status, labour market affiliation, and co-morbidity from nationwide registers. Associations were analysed as time-to-event using the pseudo-value approach. Missing data were handled using multiple imputations.

RESULTS: A total of 802 eligible patients were included in the register-based analyses and 411 patients (51%) responded to the questionnaire. The results based on data from registers indicated that patients were less likely to be referred to PRO-based follow-up if they lived alone, had low education or household income, received temporary or permanent social benefits, or if they had a psychiatric diagnosis. The results based on data from the questionnaire indicated that patients were less likely to be referred to PRO-based follow-up if they reported low levels of health literacy, self-efficacy, patient activation, well-being, or general health.

CONCLUSION: Both self-reported and register-based analyses indicated that socioeconomically advantaged patients were referred more often to PRO-based follow-up than socioeconomically disadvantaged patients.

OriginalsprogEngelsk
TidsskriftQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Vol/bind29
Udgave nummer5
Sider (fra-til)1335-1347
Antal sider13
ISSN0962-9343
DOI
StatusUdgivet - maj 2020
Udgivet eksterntJa

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