TY - JOUR
T1 - Satisfaction with and perceived benefits of needs-assessment related to rehabilitation after chemotherapy among patients with breast cancer
AU - Mikkelsen, Marta Kramer
AU - Jensen, Helle Elisabeth
AU - Spiegelhauer, Guri
AU - Amdi, Kirsten
AU - Madsen, Kasper
AU - Nybom, Kirstine Steen
AU - Holm-Petersen, Rikke Balschmidt
AU - Nielsen, Dorte
PY - 2024/6
Y1 - 2024/6
N2 - PURPOSE: To investigate satisfaction with and perceived benefits of a model of needs-assessment related to rehabilitation (NARR) in women with early breast cancer after (neo)adjuvant chemotherapy.MATERIALS AND METHODS: Mixed methods were applied using survey (N = 200) along with interviews (N = 20). The survey included measurement of distress and self-assessed need of and satisfaction with the NARR. Type of experienced side/late effects were registered along with numbers of and reasons for referrals to rehabilitation. Individual semi-structured interviews were conducted. Quantitative data were analyzed using descriptive statistics, and qualitative data were analyzed with thematic analysis.RESULTS: Overall, 217 patients participated in a NARR and 200 (92%) accepted participation in the survey. Furthermore, 20/37 (54%) invited patients were interviewed. After the NARR, 39 patients (20%) were referred to rehabilitation. While satisfaction was high, findings regarding distress and need of the NARR were equivocal and indicated a need for talking about experiences throughout the cancer trajectory.CONCLUSIONS: While only 20% had rehabilitation needs, satisfaction with the NARR was high and patients benefitted from being confirmed in normality of their experiences. It is recommended to address patients' side/late effects after chemotherapy for early breast cancer to identify rehabilitation needs, reduce distress, and improve quality of life.
AB - PURPOSE: To investigate satisfaction with and perceived benefits of a model of needs-assessment related to rehabilitation (NARR) in women with early breast cancer after (neo)adjuvant chemotherapy.MATERIALS AND METHODS: Mixed methods were applied using survey (N = 200) along with interviews (N = 20). The survey included measurement of distress and self-assessed need of and satisfaction with the NARR. Type of experienced side/late effects were registered along with numbers of and reasons for referrals to rehabilitation. Individual semi-structured interviews were conducted. Quantitative data were analyzed using descriptive statistics, and qualitative data were analyzed with thematic analysis.RESULTS: Overall, 217 patients participated in a NARR and 200 (92%) accepted participation in the survey. Furthermore, 20/37 (54%) invited patients were interviewed. After the NARR, 39 patients (20%) were referred to rehabilitation. While satisfaction was high, findings regarding distress and need of the NARR were equivocal and indicated a need for talking about experiences throughout the cancer trajectory.CONCLUSIONS: While only 20% had rehabilitation needs, satisfaction with the NARR was high and patients benefitted from being confirmed in normality of their experiences. It is recommended to address patients' side/late effects after chemotherapy for early breast cancer to identify rehabilitation needs, reduce distress, and improve quality of life.
KW - Adult
KW - Aged
KW - Antineoplastic Agents/therapeutic use
KW - Breast Neoplasms/drug therapy
KW - Chemotherapy, Adjuvant
KW - Female
KW - Humans
KW - Interviews as Topic
KW - Middle Aged
KW - Needs Assessment
KW - Neoadjuvant Therapy
KW - Patient Satisfaction
KW - Qualitative Research
KW - Quality of Life
KW - Surveys and Questionnaires
UR - http://www.scopus.com/inward/record.url?scp=85162665087&partnerID=8YFLogxK
U2 - 10.1080/09638288.2023.2225880
DO - 10.1080/09638288.2023.2225880
M3 - Journal article
C2 - 37345500
SN - 1464-5165
VL - 46
SP - 2548
EP - 2557
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
IS - 12
ER -