Forskning
Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital
Udgivet

Results of the interprofessional and interdisciplinary Berlin round table on patient-reported outcomes, quality of life, and treatment expectations of patients with gynecological cancer under maintenance treatment

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. The forefront of ovarian cancer therapy: update on PARP inhibitors

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  2. Major clinical research advances in gynecologic cancer in 2019

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  • Robert Armbrust
  • Sara Alavi
  • Adak Pirmorady
  • Frank Chen
  • Nicoletta Colombo
  • Murat Gultekin
  • Charo Hierro
  • Birthe Lemley
  • Mansoor Raza Mirza
  • Esra Urkmez
  • Christina Fotopoulou
  • Jutta Vinzent
  • Antonio Gonzalez Martin
  • Andrea Krull
  • Judith Heepe
  • Mathias Rose
  • Jalid Sehouli
Vis graf over relationer

BACKGROUND: Patients' reported outcomes and their perspectives around their therapeutic management is a field of continuously increasing relevance in gynecological oncology. We report the results of the Berlin dialog on seven patient-reported parameters and outcomes concerning chemotherapy and maintenance treatment in patients with gynecological cancer.

METHODS: Key opinion leaders in gynecological oncology from different European counties and representatives of leading patients' advocate groups in Berlin held a consensus meeting in Berlin on April 6, 2019. Seven topics of interest were identified in advance around quality of life, iatrogenic toxicity, treatment decision-making processes, sexuality, participation in clinical trials, second opinion, and long-term survivors with the the following standard operating procedure for processing and discussion: (1) agreement on its relevance; (2) literature review, and (3) discussion and consensus statements.

RESULTS: All main topics reached a consensus approval. The defined statements emphasized the importance of patients' role in incorporating and establishing quality of life as an outcome parameter in clinical trials. Furthermore, discussants raised the importance of identifying new tools for reflecting patient-reported iatrogenic toxicity as well as emphasizing patients' rights in providing personal information, access to second opinion in the decision-making process, and their participation in clinical trials.

CONCLUSION: The results of this round table meeting could help redefine perspectives on the discussed topics and the importance for therapeutic management as well as for trial designs.

OriginalsprogEngelsk
TidsskriftInternational journal of gynecological cancer : official journal of the International Gynecological Cancer Society
Vol/bind30
Udgave nummer10
Sider (fra-til)1603-1607
Antal sider5
ISSN1048-891X
DOI
StatusUdgivet - okt. 2020

Bibliografisk note

© IGCS and ESGO 2020. No commercial re-use. See rights and permissions. Published by BMJ.

ID: 60987260