Quality of Life Measures in Aortic Stenosis Research: A Narrative Review

Derk Frank, Simon Kennon, Nikolaos Bonaros, Mauro Romano, Carlo Di Mario, Dirk-Jan van Ginkel, Wilbert Bor, Markus Kasel, Ole De Backer, Violetta Hachaturyan, Claudia M Lüske, Jana Kurucova, Peter Bramlage*, Rima Styra

*Corresponding author af dette arbejde

Abstract

BACKGROUND: Elderly patients with aortic stenosis (AS) not only have a reduced life expectancy but also a reduced quality of life (QoL). The benefits of an AS intervention may be considered a balance between a good QoL and a reasonably extended life. However, the different questionnaires being used to determine the QoL were generally not developed for the specific situation of patients with AS and come with strengths and considerable weaknesses. The objective of this article was to provide an overview of the available QoL instruments in AS research, describe their strengths and weaknesses, and provide our assessment of the utility of the available scoring instruments for QoL measurements in AS.

SUMMARY: We identified and reviewed the following instruments that are used in AS research: Short Form Health Survey (SF-36/SF-12), EuroQol-5D (EQ-5D), the Illness Intrusiveness Rating Scale (IIRS), the HeartQoL, the Kansas City Cardiomyopathy Questionnaire (KCCQ), the Minnesota Living with Heart Failure Questionnaire (MLHF), the MacNew Questionnaire, and the Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ).

KEY MESSAGES: There is no standardized assessment of QoL in patients with AS. Many different questionnaires are being used, but they are rarely specific for AS. There is a need for AS-specific research into the QoL of patients as life prolongation may compete for an improved QoL in this elderly patient group.

OriginalsprogEngelsk
TidsskriftCardiology
Vol/bind148
Udgave nummer6
Sider (fra-til)556-570
Antal sider15
ISSN0008-6312
DOI
StatusUdgivet - 2023

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