Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1

Florian Halbeisen; Claire Hogg; Mikkel C Alanin; Zuzanna Bukowy-Bieryllo; Francisco Dasi; Julie Duncan; Amanda Friend; Myrofora Goutaki; Claire Jackson; Victoria Keenan; Amanda Harris; Robert A Hirst; Philipp Latzin; Gemma Marsh; Kim Nielsen; Dominic Norris; Daniel Pellicer; Ana Reula; Bruna Rubbo; Nisreen Rumman; Amelia Shoemark; Woolf T Walker; Claudia E Kuehni; Jane S Lucas

doi:10.1186/s12919-018-0098-9

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1

Florian Halbeisen, Claire Hogg, Mikkel C Alanin, Zuzanna Bukowy-Bieryllo, Francisco Dasi, Julie Duncan, Amanda Friend, Myrofora Goutaki, Claire Jackson, Victoria Keenan, Amanda Harris, Robert A Hirst, Philipp Latzin, Gemma Marsh, Kim Nielsen, Dominic Norris, Daniel Pellicer, Ana Reula, Bruna Rubbo, Nisreen RummanAmelia Shoemark, Woolf T Walker, Claudia E Kuehni, Jane S Lucas^*

^*Corresponding author af dette arbejde

11 Citationer (Scopus)

Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

Originalsprog	Engelsk
Tidsskrift	Spie Proceedings
Vol/bind	12
Udgave nummer	Suppl 2
Sider (fra-til)	1
ISSN	1753-6561
DOI	https://doi.org/10.1186/s12919-018-0098-9
Status	Udgivet - 5 mar. 2018

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10.1186/s12919-018-0098-9

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Halbeisen, F., Hogg, C., Alanin, M. C., Bukowy-Bieryllo, Z., Dasi, F., Duncan, J., Friend, A., Goutaki, M., Jackson, C., Keenan, V., Harris, A., Hirst, R. A., Latzin, P., Marsh, G., Nielsen, K., Norris, D., Pellicer, D., Reula, A., Rubbo, B., ... Lucas, J. S. (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1. Spie Proceedings, 12(Suppl 2), 1. https://doi.org/10.1186/s12919-018-0098-9

Halbeisen, F, Hogg, C, Alanin, MC, Bukowy-Bieryllo, Z, Dasi, F, Duncan, J, Friend, A, Goutaki, M, Jackson, C, Keenan, V, Harris, A, Hirst, RA, Latzin, P, Marsh, G, Nielsen, K, Norris, D, Pellicer, D, Reula, A, Rubbo, B, Rumman, N, Shoemark, A, Walker, WT, Kuehni, CE & Lucas, JS 2018, 'Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1', Spie Proceedings, bind 12, nr. Suppl 2, s. 1. https://doi.org/10.1186/s12919-018-0098-9

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title = "Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1",

abstract = "Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.",

author = "Florian Halbeisen and Claire Hogg and Alanin, {Mikkel C} and Zuzanna Bukowy-Bieryllo and Francisco Dasi and Julie Duncan and Amanda Friend and Myrofora Goutaki and Claire Jackson and Victoria Keenan and Amanda Harris and Hirst, {Robert A} and Philipp Latzin and Gemma Marsh and Kim Nielsen and Dominic Norris and Daniel Pellicer and Ana Reula and Bruna Rubbo and Nisreen Rumman and Amelia Shoemark and Walker, {Woolf T} and Kuehni, {Claudia E} and Lucas, {Jane S}",

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AU - Halbeisen, Florian

AU - Hogg, Claire

AU - Alanin, Mikkel C

AU - Bukowy-Bieryllo, Zuzanna

AU - Dasi, Francisco

AU - Duncan, Julie

AU - Friend, Amanda

AU - Goutaki, Myrofora

AU - Jackson, Claire

AU - Keenan, Victoria

AU - Harris, Amanda

AU - Hirst, Robert A

AU - Latzin, Philipp

AU - Marsh, Gemma

AU - Nielsen, Kim

AU - Norris, Dominic

AU - Pellicer, Daniel

AU - Reula, Ana

AU - Rubbo, Bruna

AU - Rumman, Nisreen

AU - Shoemark, Amelia

AU - Walker, Woolf T

AU - Kuehni, Claudia E

AU - Lucas, Jane S

PY - 2018/3/5

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N2 - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

AB - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

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DO - 10.1186/s12919-018-0098-9

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JO - Spie Proceedings

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Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: part 1

Abstract

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