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Region Hovedstaden - en del af Københavns Universitetshospital

Predicting life with a permanent end colostomy: A prospective study on function, bother and acceptance

Publikation: Bidrag til tidsskriftTidsskriftartikelpeer review


  1. Limited use of local anesthesia for open inguinal hernia repair: a qualitative study

    Publikation: Bidrag til tidsskriftTidsskriftartikelpeer review

  • Sofia Sandberg
  • Dan Asplund
  • David Bock
  • Carolina Ehrencrona
  • Björn Ohlsson
  • Jennifer Park
  • Jacob Rosenberg
  • Kenneth Smedh
  • Sofie Walming
  • Eva Angenete
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AIM: The factors that influence a patient's experience of a colostomy are not known. The aim of this study was to characterise stoma function, stoma-related bother and acceptance among patients operated for rectal cancer and to investigate if there were any preoperative personal factors with predictive impact on long-term stoma-related bother.

METHODS: The QoLiRECT (Quality of Life in RECTal cancer) study is a prospective multicentre study of patients with rectal cancer. This was a subgroup analysis of patients with a permanent colostomy with a 2-year follow-up. Penalised regression models with shrinkage estimation were used to predict the 1-and 2-year bother using baseline data. The predictive value and the importance of the included variables were evaluated using bootstrap resampling techniques.

RESULTS: A total of 379 patients were included. Overall stoma acceptance was high and a majority of patients were not bothered by their stoma; 77% and 83% at 1 and 2 years, respectively. The subgroup of patients with stoma-related bother had a high prevalence of difficulties, especially fear of leakage, and a low stoma acceptance in daily life. Both clinical and personal factors were associated with stoma-related bother. The most important factors were quality of life and physical health, but the prediction accuracy was low.

CONCLUSIONS: Stoma-related bother was associated with overall stoma dysfunction. As stoma-related bother is a multifactorial problem, it was not possible to predict which patients will experience stoma-related bother. It is therefore of importance to prevent stoma-related symptoms and optimise stoma function to reduce long-term bother and increase stoma acceptance.

TidsskriftColorectal Disease
Udgave nummer10
Sider (fra-til)2681-2689
Antal sider9
StatusUdgivet - okt. 2021

Bibliografisk note

© 2021 The Authors. Colorectal Disease published by John Wiley & Sons Ltd on behalf of Association of Coloproctology of Great Britain and Ireland.

ID: 69769635