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Patients' perceptions of an intensive care unit diary written by relatives: A hermeneutic phenomenological study

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@article{9c12b23fd19c4e6f94668457e21776b1,
title = "Patients' perceptions of an intensive care unit diary written by relatives: A hermeneutic phenomenological study",
abstract = "OBJECTIVE: To explore patients' perceptions of an intensive care unit diary written by relatives including pictures added by staff.DESIGN: Ten patients were interviewed 3-6 and 8-16 months after discharge from the intensive care unit. Most patients were interviewed with a relative present. Interviews were analysed using Ricoeur's theory of interpretation.SETTING: Interviews took place in participants' homes.FINDINGS: Patients found the diary written by relatives with photos taken by staff to be valuable providing information that helped them understand their time in the intensive care unit. The diary text gave patients insight into relatives' experiences and suffering. Patients were touched by the love and care conveyed in the diary, however, the diaries could overwhelm the patients when they were confronted with the grief and agony endured by their relatives.CONCLUSION: Although diaries kept by relatives confront patients with consequences beyond their own suffering, they are informative and promote understanding of what patient and family experienced during critical illness. The diaries expressed how much the relatives cared for the patient thus paving the way for mutual support and understanding. Diaries authored by relatives represent a new element to ICU diaries that have evolved from a nursing intervention toward family participation.",
keywords = "Critical Care Nursing, Family nursing, Hermeneutics, ICU diaries, Qualitative research",
author = "{H{\o}jager Nielsen}, Anne and Ingrid Egerod and Sanne Angel",
note = "Copyright {\circledC} 2019 Elsevier Ltd. All rights reserved.",
year = "2019",
month = "12",
doi = "10.1016/j.iccn.2019.08.001",
language = "English",
volume = "55",
pages = "102751",
journal = "Intensive and Critical Care Nursing",
issn = "0964-3397",
publisher = "Churchill Livingstone",

}

RIS

TY - JOUR

T1 - Patients' perceptions of an intensive care unit diary written by relatives

T2 - A hermeneutic phenomenological study

AU - Højager Nielsen, Anne

AU - Egerod, Ingrid

AU - Angel, Sanne

N1 - Copyright © 2019 Elsevier Ltd. All rights reserved.

PY - 2019/12

Y1 - 2019/12

N2 - OBJECTIVE: To explore patients' perceptions of an intensive care unit diary written by relatives including pictures added by staff.DESIGN: Ten patients were interviewed 3-6 and 8-16 months after discharge from the intensive care unit. Most patients were interviewed with a relative present. Interviews were analysed using Ricoeur's theory of interpretation.SETTING: Interviews took place in participants' homes.FINDINGS: Patients found the diary written by relatives with photos taken by staff to be valuable providing information that helped them understand their time in the intensive care unit. The diary text gave patients insight into relatives' experiences and suffering. Patients were touched by the love and care conveyed in the diary, however, the diaries could overwhelm the patients when they were confronted with the grief and agony endured by their relatives.CONCLUSION: Although diaries kept by relatives confront patients with consequences beyond their own suffering, they are informative and promote understanding of what patient and family experienced during critical illness. The diaries expressed how much the relatives cared for the patient thus paving the way for mutual support and understanding. Diaries authored by relatives represent a new element to ICU diaries that have evolved from a nursing intervention toward family participation.

AB - OBJECTIVE: To explore patients' perceptions of an intensive care unit diary written by relatives including pictures added by staff.DESIGN: Ten patients were interviewed 3-6 and 8-16 months after discharge from the intensive care unit. Most patients were interviewed with a relative present. Interviews were analysed using Ricoeur's theory of interpretation.SETTING: Interviews took place in participants' homes.FINDINGS: Patients found the diary written by relatives with photos taken by staff to be valuable providing information that helped them understand their time in the intensive care unit. The diary text gave patients insight into relatives' experiences and suffering. Patients were touched by the love and care conveyed in the diary, however, the diaries could overwhelm the patients when they were confronted with the grief and agony endured by their relatives.CONCLUSION: Although diaries kept by relatives confront patients with consequences beyond their own suffering, they are informative and promote understanding of what patient and family experienced during critical illness. The diaries expressed how much the relatives cared for the patient thus paving the way for mutual support and understanding. Diaries authored by relatives represent a new element to ICU diaries that have evolved from a nursing intervention toward family participation.

KW - Critical Care Nursing

KW - Family nursing

KW - Hermeneutics

KW - ICU diaries

KW - Qualitative research

U2 - 10.1016/j.iccn.2019.08.001

DO - 10.1016/j.iccn.2019.08.001

M3 - Journal article

VL - 55

SP - 102751

JO - Intensive and Critical Care Nursing

JF - Intensive and Critical Care Nursing

SN - 0964-3397

ER -

ID: 58616222