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Patients' perceptions of an intensive care unit diary written by relatives: A hermeneutic phenomenological study

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Trends and recommendations for critical care nursing research in the Nordic countries: Triangulation of review and survey data

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Trends and recommendations for critical care nursing research in the Nordic countries: Triangulation of review and survey data

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Long-term patient-important outcomes after septic shock: a protocol for 1-year follow-up of the CLASSIC-trial

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. International perspectives on the pediatric nurse practitioner role

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Extent and application of patient diaries in Austria: process of continuing adaptation

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

OBJECTIVE: To explore patients' perceptions of an intensive care unit diary written by relatives including pictures added by staff.

DESIGN: Ten patients were interviewed 3-6 and 8-16 months after discharge from the intensive care unit. Most patients were interviewed with a relative present. Interviews were analysed using Ricoeur's theory of interpretation.

SETTING: Interviews took place in participants' homes.

FINDINGS: Patients found the diary written by relatives with photos taken by staff to be valuable providing information that helped them understand their time in the intensive care unit. The diary text gave patients insight into relatives' experiences and suffering. Patients were touched by the love and care conveyed in the diary, however, the diaries could overwhelm the patients when they were confronted with the grief and agony endured by their relatives.

CONCLUSION: Although diaries kept by relatives confront patients with consequences beyond their own suffering, they are informative and promote understanding of what patient and family experienced during critical illness. The diaries expressed how much the relatives cared for the patient thus paving the way for mutual support and understanding. Diaries authored by relatives represent a new element to ICU diaries that have evolved from a nursing intervention toward family participation.

OriginalsprogEngelsk
TidsskriftIntensive and Critical Care Nursing
Vol/bind55
Sider (fra-til)102751
ISSN0964-3397
DOI
StatusUdgivet - dec. 2019

Bibliografisk note

Copyright © 2019 Elsevier Ltd. All rights reserved.

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