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Past, present and future, the experience of time during examination for malignant brain tumor: a qualitative observational study

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@article{4569a86fc3b44505a68f24805b0b55a9,
title = "Past, present and future, the experience of time during examination for malignant brain tumor: a qualitative observational study",
abstract = "BACKGROUND: Primary malignant brain tumor is a severe disease with a poor prognosis causing reduced life expectancy and possible alteration in the perception of time. The aim of this study was to gain deeper insight into the perception of time from the perspective of patients with brain cancer as they pass through the Danish Integrated Brain Cancer Pathway at a university hospital in Denmark.METHODS: Data were generated by shadowing six patients and relatives during their visit to and hospitalisation in a neurosurgical department.RESULTS: Through one constructed case, three perspectives of time were identified. The patient's perception of time during his illness, the healthcare system's perception of time and, finally, an ethical time perspective. The analysis showed a discrepancy between patients' and healthcare professionals' perception of time. Furthermore, the results revealed an ethical time dimension.CONCLUSIONS: The findings contribute to a better understanding of the perception of time among seriously ill patients and may further healthcare professionals' awareness of how to support patients in achieving a more meaningful use of their remaining lifetime.",
keywords = "Malignant brain tumor, Neurosurgery, Observational study, Qualitative research, Time perception",
author = "Rikke Guldager and Hansen, {Pernille Vinding} and Morten Ziebell",
year = "2021",
month = apr,
doi = "10.1007/s00701-020-04693-z",
language = "English",
volume = "163",
pages = "959--967",
journal = "Acta Neurochirurgica",
issn = "0001-6268",
publisher = "Springer Wien",
number = "4",

}

RIS

TY - JOUR

T1 - Past, present and future, the experience of time during examination for malignant brain tumor

T2 - a qualitative observational study

AU - Guldager, Rikke

AU - Hansen, Pernille Vinding

AU - Ziebell, Morten

PY - 2021/4

Y1 - 2021/4

N2 - BACKGROUND: Primary malignant brain tumor is a severe disease with a poor prognosis causing reduced life expectancy and possible alteration in the perception of time. The aim of this study was to gain deeper insight into the perception of time from the perspective of patients with brain cancer as they pass through the Danish Integrated Brain Cancer Pathway at a university hospital in Denmark.METHODS: Data were generated by shadowing six patients and relatives during their visit to and hospitalisation in a neurosurgical department.RESULTS: Through one constructed case, three perspectives of time were identified. The patient's perception of time during his illness, the healthcare system's perception of time and, finally, an ethical time perspective. The analysis showed a discrepancy between patients' and healthcare professionals' perception of time. Furthermore, the results revealed an ethical time dimension.CONCLUSIONS: The findings contribute to a better understanding of the perception of time among seriously ill patients and may further healthcare professionals' awareness of how to support patients in achieving a more meaningful use of their remaining lifetime.

AB - BACKGROUND: Primary malignant brain tumor is a severe disease with a poor prognosis causing reduced life expectancy and possible alteration in the perception of time. The aim of this study was to gain deeper insight into the perception of time from the perspective of patients with brain cancer as they pass through the Danish Integrated Brain Cancer Pathway at a university hospital in Denmark.METHODS: Data were generated by shadowing six patients and relatives during their visit to and hospitalisation in a neurosurgical department.RESULTS: Through one constructed case, three perspectives of time were identified. The patient's perception of time during his illness, the healthcare system's perception of time and, finally, an ethical time perspective. The analysis showed a discrepancy between patients' and healthcare professionals' perception of time. Furthermore, the results revealed an ethical time dimension.CONCLUSIONS: The findings contribute to a better understanding of the perception of time among seriously ill patients and may further healthcare professionals' awareness of how to support patients in achieving a more meaningful use of their remaining lifetime.

KW - Malignant brain tumor

KW - Neurosurgery

KW - Observational study

KW - Qualitative research

KW - Time perception

UR - http://www.scopus.com/inward/record.url?scp=85098705199&partnerID=8YFLogxK

U2 - 10.1007/s00701-020-04693-z

DO - 10.1007/s00701-020-04693-z

M3 - Journal article

C2 - 33389116

VL - 163

SP - 959

EP - 967

JO - Acta Neurochirurgica

JF - Acta Neurochirurgica

SN - 0001-6268

IS - 4

ER -

ID: 63844458