Abstract
Background: Medical treatment with anti-TNF alfa has a great impact on Spondylarthropathy (SpA) (1). This gives the patient an increased contact to the health professionals due to the administration of the medical treatment and the close follow-ups. This contact gives nurses in clinical practice a possibility of more attention according to the patients' daily living with SpA.
Semi- qualitative studies reveal that SpA patients experience pain, fatigue and impaired quality of life in general (2, 3). But to which extent these impacts influence on the daily living with SpA is not fully investigated. The result is that the quality of the care is correspondently reduced. It is important to investigate the experiences of the patients' lifeworld to determine existential circumstances with SpA. This knowledge can contribute to improve the nursing and the planning of a patient education program that includes the conditions of life as it is lived.
Objectives: To investigate the daily experience as it is living with SpA.
Methods: 24 out-clinic SpA patients completed self-administered questionnaires on their immediately experience of living with the disease SpA. Inspired by Kate Lorig's salient belief assessment (4), only one question was asked. "What are your reflections when you hear the word Spondylarthropathy?"
According to Max Van Manen's description of the 4 existentials of the lifeworld: Lived Body, Lived Time, Lived human Relations and Lived Space (5) the answers were interpreted in a heuristic manner, with the purpose to get a direction for further investigation.
Results: The questionnaires generated 74 expressions divided as:
Lived body (50%), lived time (16%), lived human relations (26%) and lived space (8%).
Conclusion: SpA has a big influence on the mobility of the body. In daily living the patients experience stiffness which together with pain and fatigue gives limitations in human relations and social contacts, limitations in physical intimacy with spouse and children. The patients have a negative self-body image, according to the fact that the body do not always obey. This has an impact on spatiality; the space has to adapt to the patient and not the other way around. Furthermore thoughts and uncertainty about the future result in a feeling of powerlessness which all together has a negative impact on the experience in the quality of daily living.
The consistency for the nursing and the patient education is that the extentials body, time, human relations and space are of great importance to include in the search of problems and conditions in the living with a chronic disease as SpA. In future investigations, of the experience of the daily living with SpA, it is needed to supply the research with qualitative studies.
References: 1. Braun J, et al. Rheumatology 2005; 44: 670-676
2. Özgül. Clinical Rheumatology. Publ. online 10 aug. 2005
3. Van Turenberg. Arthritis Care and Research 47:8-16, 2002
4. Lorig, Kate. Patient Education - a practical approach. Sage Publ. 2001
5. Van Manen, Max. Researching lived experience. The State University of New York 1990.
Citation: Ann Rheum Dis 2007;66(Suppl II):643
Semi- qualitative studies reveal that SpA patients experience pain, fatigue and impaired quality of life in general (2, 3). But to which extent these impacts influence on the daily living with SpA is not fully investigated. The result is that the quality of the care is correspondently reduced. It is important to investigate the experiences of the patients' lifeworld to determine existential circumstances with SpA. This knowledge can contribute to improve the nursing and the planning of a patient education program that includes the conditions of life as it is lived.
Objectives: To investigate the daily experience as it is living with SpA.
Methods: 24 out-clinic SpA patients completed self-administered questionnaires on their immediately experience of living with the disease SpA. Inspired by Kate Lorig's salient belief assessment (4), only one question was asked. "What are your reflections when you hear the word Spondylarthropathy?"
According to Max Van Manen's description of the 4 existentials of the lifeworld: Lived Body, Lived Time, Lived human Relations and Lived Space (5) the answers were interpreted in a heuristic manner, with the purpose to get a direction for further investigation.
Results: The questionnaires generated 74 expressions divided as:
Lived body (50%), lived time (16%), lived human relations (26%) and lived space (8%).
Conclusion: SpA has a big influence on the mobility of the body. In daily living the patients experience stiffness which together with pain and fatigue gives limitations in human relations and social contacts, limitations in physical intimacy with spouse and children. The patients have a negative self-body image, according to the fact that the body do not always obey. This has an impact on spatiality; the space has to adapt to the patient and not the other way around. Furthermore thoughts and uncertainty about the future result in a feeling of powerlessness which all together has a negative impact on the experience in the quality of daily living.
The consistency for the nursing and the patient education is that the extentials body, time, human relations and space are of great importance to include in the search of problems and conditions in the living with a chronic disease as SpA. In future investigations, of the experience of the daily living with SpA, it is needed to supply the research with qualitative studies.
References: 1. Braun J, et al. Rheumatology 2005; 44: 670-676
2. Özgül. Clinical Rheumatology. Publ. online 10 aug. 2005
3. Van Turenberg. Arthritis Care and Research 47:8-16, 2002
4. Lorig, Kate. Patient Education - a practical approach. Sage Publ. 2001
5. Van Manen, Max. Researching lived experience. The State University of New York 1990.
Citation: Ann Rheum Dis 2007;66(Suppl II):643
| Originalsprog | Engelsk |
|---|---|
| Publikationsdato | 1 jun. 2007 |
| Status | Udgivet - 1 jun. 2007 |
| Udgivet eksternt | Ja |