Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital

Living with heart failure: perspectives of ethnic minority families

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review


  1. Catheter ablation and mortality, stroke and heart failure readmission with atrial fibrillation

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Coronary risk of patients with valvular heart disease: prospective validation of CT-Valve Score

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Long-term impact of baseline anaemia on clinical outcomes following percutaneous coronary intervention in stable angina

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. In Conversation with a Frontline Worker in a Care Home in Sweden during the COVID-19 Pandemic

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. The COVID-19 Pandemic: A Family Affair

    Publikation: Bidrag til tidsskriftLederForskningpeer review

  3. Nurses' attitudes regarding the importance of families in nursing care: a cross-sectional study

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

BACKGROUND: The family perspective on heart failure (HF) has an important role in patients' self-care patterns, adjustment to the disease and quality of life. Little is known about families' experiences of living with HF, particularly in ethnic minority families. This study describes the experiences of Iranian families living with HF as an ethnic minority family in Denmark.

METHODS: In this descriptive qualitative study, we conducted eight face-to-face joint family interviews of Iranian patients with HF and their family members living in Denmark. We used content analysis with an inductive approach for data analysis.

RESULTS: We identified three categories: family daily life, process of independence and family relationships. Families were faced with physical restrictions, emotional distress and social limitations in their daily lives that threatened the patients' independence. Different strategies were used to promote independence. One strategy was normalisation and avoiding the sick role; another strategy was accepting and adjusting themselves to challenges and limitations. The independence process itself had an impact on family relationships. Adjusting well to the new situation strengthened the relationship, while having problems in adjustment strained the relationship within the family.

CONCLUSIONS: This study highlights the process of independence as perceived by families living with HF. It is crucial to both families and healthcare professionals to maintain a balance between providing adequate support and ensuring independence when dealing with patients with HF. Understanding patients' stories and their needs seems to be helpful in gaining this balance.

TidsskriftOpen Heart
Udgave nummer1
StatusUdgivet - jun. 2020

Bibliografisk note

© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

ID: 60209848