Forskning
Udskriv Udskriv
Switch language
Region Hovedstaden - en del af Københavns Universitetshospital
Udgivet

Initiating transitional care for adolescents with cystic fibrosis at the age of 12 is both feasible and promising

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Structural brain maturation differs between preterm and term piglets, whereas brain activity does not

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Low-saturated-fat and low-cholesterol diet does not alter pubertal development and hormonal status in adolescents

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Implementation of discharge recommendations in type 1 diabetes depends on specialist nurse follow-up

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Markers of bone turnover are reduced in patients with CF related diabetes; the role of glucose

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Long-Term Lung Function and Exercise Capacity in Postinfectious chILD

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  3. Antibody response against Mycobacterium avium complex in cystic fibrosis patients measured by a novel IgG ELISA test

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Danish doctors' reactions to 'internationalization' in clinical training in a public university hospital

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

Vis graf over relationer

AIM: Adolescence is a vulnerable period in cystic fibrosis, associated with declining lung function. This study described, implemented and evaluated a transition programme for adolescents.

METHODS: We conducted a single centre, nonrandomised and noncontrolled prospective programme at the cystic fibrosis centre at Copenhagen University Hospital Rigshospitalet from 2010 to 2011, assessing patients aged 12-18 at baseline and after 12 months. Changes implemented included staff training on communication, a more youth-friendly feel to the outpatient clinic, the introduction of youth consultations partly alone with the adolescent, and a parents' evening focusing on cystic fibrosis in adolescence. Lung function and body mass index (BMI) were measured monthly and adolescents were assessed for their readiness for transition and quality of life at baseline and 12 months.

RESULTS: We found that 40 (98%) of the eligible patients participated and youth consultations were successfully implemented with no dropouts. The readiness checklist score increased significantly over the one-year study period, indicating increased readiness for transfer and self-care. Overall quality of life, lung function and BMI remained stable during the study period.

CONCLUSION: A well-structured transition programme for cystic fibrosis patients as young as 12 years of age proved to be both feasible and sustainable.

OriginalsprogEngelsk
TidsskriftActa paediatrica
Vol/bind107
Udgave nummer11
Sider (fra-til)1977-82
ISSN1651-2227
DOI
StatusUdgivet - 2018

ID: 54726456