How participatory action research changed our view of the challenges of shared decision-making training

Objective: This paper aims to demonstrate how the use of participatory action research (PAR) helped us
identify ways to respond to communication challenges associated with shared decision-making (SDM)
training.
Methods: Patients, relatives, researchers, and health professionals were involved in a PAR process that
included: (1) two theatre workshops, (2) a pilot study of an SDM training module involving
questionnaires and evaluation meetings, and (3) three reflection workshops.
Results: The PAR process revealed that health professionals often struggled with addressing existential
issues such as concerns about life, relationships, meaning, and ability to lead responsive dialogue.
Following the PAR process, a communication programme that included communication on existential
issues and coaching was drafted.
Conclusion: By involving multiple stakeholders in a comprehensive PAR process, valuable communication
skills addressing a broader understanding of SDM were identified. A communication programme aimed
to enhance skills in a mindful and responsive clinical dialogue on the expectations, values, and hopes of
patients and their relatives was drafted.
Practical implications: Before integrating new communication concepts such as SDM in communication
training, research methods such as PAR can be used to improve understanding and identify the needs and
priorities of both patients and health professionals.