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Region Hovedstaden - en del af Københavns Universitetshospital
E-pub ahead of print

Guidelines of the International Headache Society for Clinic-Based Headache Registries, 1st edition

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

DOI

  1. Headache provocation by nitric oxide in men who have never experienced a headache

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  2. Prevalence of neck pain in migraine: A systematic review and meta-analysis

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  3. Polygenic risk provides biological validity for the ICHD-3 criteria among Finnish migraine families

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  4. Smooth muscle ATP-sensitive potassium channels mediate migraine-relevant hypersensitivity in mouse models

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  1. Prevalence of neck pain in migraine: A systematic review and meta-analysis

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  2. Calcitonin gene-related peptide and pituitary adenylate cyclase-activating polypeptide in migraine treatment

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  3. Human Cerebral Perfusion, Oxygen Consumption, and Lactate Production in Response to Hypoxic Exposure

    Publikation: Bidrag til tidsskriftTidsskriftartikelForskningpeer review

  4. Brain barriers and their potential role in migraine pathophysiology

    Publikation: Bidrag til tidsskriftReviewForskningpeer review

  • Todd J Schwedt
  • Cristina Tassorelli
  • Stephen D Silberstein
  • Christina L Szperka
  • Tobias Kurth
  • Patricia Pozo-Rosich
  • Faisal Mohammad Amin
  • Richard B Lipton
  • David W Dodick
  • Messoud Ashina
  • Hans-Christoph Diener
  • Gisela M Terwindt
Vis graf over relationer

Clinic-based headache registries collect data for a wide variety of purposes including delineating disease characteristics, longitudinal natural disease courses, headache management approaches, quality of care, treatment safety and effectiveness, factors that predict treatment response, health care resource utilization, clinician adherence to guidelines, and cost-effectiveness. Registry data are valuable for numerous stakeholders, including individuals with headache disorders and their caregivers, healthcare providers, scientists, healthcare systems, regulatory authorities, pharmaceutical companies, employers, and policymakers. This International Headache Society document may serve as guidance for developing clinic-based headache registries. Use of registry data requires a formal research protocol that includes: 1) research aims; 2) methods for data collection, harmonization, analysis, privacy, and protection; 3) methods for human subject protection; and 4) publication and dissemination plans. Depending upon their objectives, headache registries should include validated headache-specific questionnaires, patient reported outcome measures, data elements that are used consistently across studies (i.e., "common data elements"), and medical record data. Amongst other data types, registries may be linked to healthcare and pharmacy claims data, biospecimens, and neuroimaging data. Headache diagnoses should be made according to the International Classification of Headache Disorders diagnostic criteria. The data from well-designed headache registries can provide wide-ranging and novel insights into the characteristics, burden, and treatment of headache disorders and ultimately lead to improvements in the management of patients with headache.

OriginalsprogEngelsk
TidsskriftCephalalgia : an international journal of headache
Sider (fra-til)3331024221099035
ISSN0333-1024
DOI
StatusE-pub ahead of print - 6 maj 2022

ID: 77901414